Mid Break Update

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I am really feeling better. I have taken a giant step back, I feel. I am streamlining my life.

I have divested myself of my Beauty blog. That was difficult. I’m disappointed. I enoyed that so much. I don’t know that it was hugely popular, but I enjoyed it. The commitment was too much, however. I will still continue to play with makeup. It is excellent therapy. It keeps my hands nimble, keeps me moving and motivated. I have a reason to sit up straight for a while, although I can lie down and apply makeup!

I’v pared down my Facebook friends list. I was originally going to delete everyone, and keep my account only as an identifier to log on to websites, but as I was deleting people, there were some who… well, I just couldn’t get rid of right away. I thought I would do two phases. Then, I decided to live with the smaller list for a few days. I like it. So far, it might be the level of socializing I need. Unfortunately, in my haste, I know I let some people go, people I probably shouldn’t have. I can’t remember everyone, though. I do hope they will be back.

After the US election last year, I added tons of friends, thinking there would be opportunities to make some great friendships. I did make some friends. But I overestimated my ability to actively participate in friendship. It’s also interesting to see who had left long ago.  But I think this was a mistake, overall. As social and gung-ho as I sometimes feel, I sometimes don’t take the time to guard my emotions or protect myself from potential toxic friendships. I need to be more vigilant.

I feel like I have been doing a lot of things in the wrong way lately. Perhaps pushing things too hard when I should be letting go. I’ve been complaining and feeling that I have no friends, but I do, and I have. I couldn’t see them for the riff-raff. It’s embarrassing to admit, but I would be disingenuous if I didn’t. I think, however, those who have been in acute pain for any length of time will understand, at least, how I may have been feeling.

I’m feeling far more zen. Focusing on myself. My family. Becoming well within myself. Banishing negativity. It is hard, because my body is going through hell, but I know it’s for the best.

I’m decorating my space with pretty things. I’m organizing everything I can get my hands on.  It’s one of my favourite things.

The muscles in my back have been killing me, partly from getting rid of stress, partly from overdoing it. My head still hurts. I have almost constant migraines and facial pain, but I try to not think about it. Keeping up with the medications help.

Another issue is that I am bad at taking my medication. I am now committed to taking my full dose at proper times, and it’s helping a lot. I know I am being stupid about this, but I lost a bunch of friends on a message board when someone decided I was a drug addict for taking my medication (it was the wrong type at the time, not a good fit, I was going through a nightmare on this stuff, so I really wasn’t great at defending myself) and it’s affected me. I am working on this.

My kids are really struggling. I am trying to be more present for them. My son does not, in fact, have Autism, but a series of learning disabilities. My daughter, does have Autism. Both have anxiety disorders. Brilliant kids, struggle to leave the house.

Be well, see you on the first!

Mercury in Retrograde

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Mercury is supposed to be in retrograde the last two weeks of August, which is why I’ve had this horrible feeling of dread. Or so I’m telling myself.

I was so restless last night, I just could not settle. I was tossing and turning. I had to strip off my nightclothes, as they were getting all twisted up. I tried to make myself a nice pillow fort, but it didn’t work. Mostly, I kept swallowing air and having to sit up and clear it. Very uncomfortable. Not so ladylike, either.

I did fall asleep around 2:00 PM, though, and sleep until 9:00 PM. I usually have no trouble going back to sleep. I’ve been just exhausted, especially after getting outside to see the eclipse! (I will post about that soon!) .  At one point in our history, people used to go to bed around 7:00 PM, sleep until 11, be awake from 11 until 1 and then sleep from 1 to 5 or 6. I could live like that quite happily.

I don’t know if you believe in numerology, I tend not to, but this year my age is divisible by 7, and those do tend to be big years where I re-invent myself. I feel different this year. I have a new outlook. 😊

I bought yet another elbow brace. Size XXL.  Now, I’m not that big anymore, why do I need an XXL? Otherwise I’m ripping them off in agony in the middle of the night, only after a few hours. This one lasted seven. I do feel better, but woah, it’s sore. My hands are sore, too. I’ve been trying to rest them, but you really need your hands! XXL is pretty tough to find. I’m actually using sleeves, not braces. I will save braces until I’m fitted by pros.

Yesterday was supposed to be my BOTOX injections.  I haven’t heard anything from the clinic, but I’m doing amazingly well, considering. I’m not having that much head pain at the moment, but it does ramp up quickly as the day goes on. I’m having a ton of abdominal cramps. I am wondering if my cpap is contributing to my swallowed air. I need another sleep test. I’m to have them for every 20 lbs I gain or lose and I’ve lost 115 lbs without any follow up. It’s straight up due to my mobility. And, the pain therein.

And of course, just the stress. I feel stressed. I don’t really know why. Maybe it’s the start of school again. I worry about my kids. My boy didn’t have a great year last year. Grade 7 sucks, though. I need to focus on being relaxed today. My breathing. Relaxing. Perhaps some organization if I can. I love that.

My corner of the bedroom is bringing me joy. I am organizing things so they are easily found and accessible. I have a bunch of trinkets and items to make me happy. Netflix on the television, my makeup organized and close by. Masks and makeup products. Some cool magnifying and fisheye lenses, a zebra striped cuddle blanket. Enough braces to brace an army. Iced tea and lip gloss.

Life is good.

💜

I’m Gorgeous! (Not)

I had a super painful boutique of painsomnia last night. As I was u6hjv9jgygs4orolling over to my left side to go to sleep, my left knee subluxed and I was in a lot of pain. I couldn’t quite settle it into place, and lay aching from 10:30 until I gave up at 2:00 am.

At 2:00 am, I gave up and picked up my tablet, started playing on the internet. I had to dim the light way down, because my eyes really hurt. I was able to chat with my sister in Beijing around 6:00 which is a nice treat. I haven’t spoken to her in a while. She was on vacation in Indonesia recently, and didn’t even load photos up anywhere! But Saturday is her busy day, and she told me this hilarious story about one of her 4-year-old students punching her in the face. I’m pretty sure the hilarity was in the telling.

After we chatted, I fell into a restless sleep, and woke up to my alarm at 10:00 am. Damn me for deciding to be productive on weekends. I hit the snooze for an hour and got up to use the washroom. I got back into bed, and decided to survey the damage of my face.

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My left eye is quite swollen. It looks hilarious. It’s not quite as weepy, but is tender. When my husband brings our son home from therapy, I think we should call Tele health and check. My eyeball isn’t infected, or I should say affected, I’m just sore around the eye, the left one, and I sleep on that side -so it’s drained into that sinus, we figure. I have taken Benadryl allergy complete, and am sitting propped up, but it’s not draining, really.

I don’t want to go to a walk-in clinic, especially while flu-ish because I don’t want to catch something worse. If it’s not urgent and can be managed, I’d rather hang on and go see my GP on Tuesday, because of course it’s a long weekend! I’m sick just about every long weekend, it’s a running joke. Our daughter is sick, too, poor sweetie.

To add to my grotesque appearance is a large pimple where my chin used to be. It’s scabbed over now and looks like a cold sore that got lost.

I need a bath so much. I am so sore, and my hair has been two weeks without a wash, and needs detangling. It would have been so good if I could have gotten to it even a day or so ago! I just do not have the spoons. I will have to tackle it first thing tomorrow. Put the family on notice. I feel so weak.

I had a neat conversation with a friend today. She is a nurse, and gets the flu shot because of being around immune compromised people like me, but she hadn’t noticed a difference herself. I explained how normally, a flu could keep me sick and essentially unconscious, because I’m sleeping to get better for six weeks or so to gain my strength. But when I have a flu shot, and they get them right, I recover much quicker. I’ve been sick nearly a week, but I’m not sleeping the whole time, and I have been keeping food down, etc. She didn’t realize it could be that bad. She’s so lovely. I’m sure she’s a great nurse!

pg2bvxtorfh32I went on a bit of a shopping spree last night. Urban Decay was offering triple points, and I’m determined to make top-tier, for some reason; and then I bought some lipstick. If I can’t put it on, at least I can buy it! I have to stop with these sprees, especially when I’m over budget. Our tax system is such that our payroll tax, I think it is, starts in January, and when your contribution is full, they stop collection, around July. This means my husband loses $1,000 out of his cheque for six months and then we forget the rest of the year. Every January it’s a new round of belt-tightening. What? Save money for the lean times! Pshaw!

There have just been so many escalating costs, too. Especially just around the first of this year. I think I’ve whined about this plenty. I won’t bore you more. It’s tough finding things to do when your concentration isn’t great, and your hands don’t work so well. Online shopping is so much fun, but that gets old too. It’s just stuff. I am enjoying playing with it when I can. I’m enjoying blogging here, too. I’ve met lovely people. Only lovely people.

I’ve offended people talking about my spending, but they may actually do things, outside, like in public. I don’t think they even realize there are months I don’t get to leave the house, so $300 on makeup isn’t horrid. What did you spend $300 on last month able person? Lattes? Taxis? Lunches? It adds up. I didn’t have those expenses, at all. But I do realize I have privilege. Many people don’t have the means. I married a smart, hard-working guy, and we have had some really lucky breaks along the way.

I’m aware I may be babbling. I’m in that hazy, cool, fun, dreamy, tired state.

I often resent that I had to stop my career, such as it was, to tend to my broken body. What could I have done if I had gotten proper support instead of being encouraged to go on LTD? Would I have been a better employee were I not in pain all the time? I don’t know. Life is this way now, and I’ve spent so much time getting to know myself, I wouldn’t trade with anyone now.

Our son is going on a class trip for four days next week and I’m stressed.  He’s growing so fast! Ugh, these kids give me so much stress, and are my world, all at the same time. I didn’t realize parenting would be as much fun as it has been. I’ve laughed so much along the way! There have been lots of tears, too. But lots of laughs. I will be so relieved when he’s back home.

Probably should nap now. My eye hasn’t changed, but is getting tired.

Wash your hands, my zebra pals! 😘

 

Impotent Rage

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I’m sure you can probably guess what I’m annoyed about. A certain POTUS is being a giant idiot, and I am having a tougher and tougher time dealing with it. Let me explain.

It’s fairly easy to put your head down when you have a chronic illness, and keep your focus on your needs, focus on your family, focus on your next milestone. There is not a thing wrong with that. I think that is a phase we all go through, and it’s a healthy thing to do from time to time.

When the election campaign started for the 2016 election in the US, I didn’t pay much attention. After all, I’m Canadian. I held a passing interest as the global citizen I had always been, but then I started to shift. The current POTUS started saying some pretty sexist things as he was campaigning. Then some pretty outrageous and sexist things. By the time he was on to Nasty Woman in October, I was firmly with Her, and there I have remained.

Fortunately, I received an invitation to Pantsuit Nation after the horror of November 9th, and met some amazing, passionate people who care. I’ve made some very good friends! I have learned so much.

I don’t talk about politics much here, because it’s not relevant: it’s not important. Not usually. Right now, though, I am feeling shell-shocked. I haven’t felt this way since right after 9-11. I feel like I’m wandering in a daze whispering why?

But that’s not productive. What is enraging me the most are the people who are ignorant of the facts, who are acting as if this measure wasn’t taken, no vetting would be done. What I must do is step away, inform myself with reputable news sites, and stay away from comment sections.

Where my heart breaks the most, is my friends in the US who have similar physical challenges. While I whoop it up in Canada with socialized medicine and medical marijuana, people can’t see their doctors.

Every time I think about it I start eating cookies. That’s not good either. Maybe I should nap.

Wait: I have a better idea! Movie time..Name it!

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