Netflix and Nausea

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My Zebra Strong tee arrived! Booster.com helps charities with fundraising, so they are a cool place to check out.

The past couple of days have been interesting. Yesterday morning I accomplished quite a bit. I cleaned a bit of my bed area and my outstanding computer files. I’m transitioning from a Yahoo address to a gmail, so I did some of that.

I napped all afternoon.

I’ve been watching a lot of Netflix. Mostly Documentaries, interspersed with Embarrassing Bodies, which mostly involves sexually harassing the male doctor, but I’m alone in my room, he can’t hear. ☺

My head hurts. I couldn’t keep down breakfast. I’m almost used to this pain now.

My memory gets really lousy as the day goes on. It’s awful. I did go on a journal spending spree and got some nice ones!

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There are some dotted pens. They are cute! I bought a proper Address Book. I won’t have to fire up the computer every time I need an address! There were three plain journals, and two holographic/iridescent journals. I’m in love with holographic or iridescent products. ❤

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Pretty! And, of course, you can see the reflection of the ring light.

It’s been thunderstorms like crazy here! 😮

I’m incredibly bored, so I’ve made Amazon my bitch, and it’s giving my husband heart palpitations. I’m terrible, I can never do just one thing at a time. The tv is on, but I have to be futzing on my tablet or organizing a drawer or writing a list… I need to Zen more. I should slow it down.

Although I felt awful today, I’m feeling better than I was this morning. My back doesn’t hurt as much, my head is okay. I might try a quick look.

It’s amazing how your pain can change. I know I’m delicate today, though. My abdomen is threatening cramps if I’m not careful. Is that the Endometriosis acting up?

Today will be quiet, with some masking, skincare, Netflix, naps, photos, and maybe a makeup look if I can.

Moving slowly, though. No need to rush!

Hope you have a great weekend!

 

 

Wonderful Things

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My family has been treating me so wonderfully the past couple of weeks. Let’s enumerate the wonderful things they’ve done for me:

My husband:

  • Has gone to the post office to retrieve numerous packages for me
  • Has found the money to allow me to shop my brains out, since it’s just about the only thing I have time and patience for. Plus Zebra outfits!
  • He brought home French Fries for me even though they were out of his way and it was late at night and he was tired
  • He got out of the warm shower to grab me a barf bucket
  • He watched an episode of South Park just because I asked
  • He has run so many errands for me, I can’t even count them!

 

My Daughter, 15

  • She has been filling my water bottles regularly
  • Listening to my exciting stories even when she’s bored
  • Checking up on me to make sure I have everything
  • Bringing me breakfast during the week

 

My Son, 13 in 6 days!

  • He has been keeping my water bottles full
  • He has been spending time with me, like the two hours last night where he snuggled and watched TV and chatted
  • Remembering not to hug me without asking, because I’m so sore
  • Bringing my coffee in the morning on weekends

 

My family has been awesome. Except for:

 

Husband:

  • Forgetting about me in the bathtub and nobody hearing me yelling about getting the shower head down, so I had to wash my hair under the tap. It was a bit uncomfortable, but not the end of the world. I did have fun teasing him about it, though! 😄

I prefer to get help in and out of the tub as I’ve been so shaky lately.  I don’t need that much assistance, just someone to ‘catch’ me, really, if I start to go over. Or call 9-1-1 if I pass out. I’m still so weak from whatever is going on with me.

I hope you enjoyed my glimpse into my family. Are you interested in my Sephora Haul? I can either show a photo here, or link my Beauty Blog post. Let me know.

 

Stay healthy Zebras! 😘

 

 

Current Mood: Exasperated

Over the weekend, I managed to get a lot of rest in and my abdominal pain is resolving. This makes me question the cyst

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Current Mood in Action

theory, although, I did have a major bout of nausea last night, which is what I was looking for. It just sseems very short. These used to last a week or so, and this was a good two to three days shorter. Now, I haven’t had one in a few years. I am getting older, that may be a factor. My Mom was 11 years older before menopause really started, she said, so I guess it’s time for peri-menopause at the least. I should likely have my hormones checked. I’m interested in what my thyroid is doing. I’m pretty sure my GP has his eye on it. This is the major problem with having illnesses. Routine, important maintenance gets pushed to the side, often with the assumption ‘someone else’ is looking after it. I have so many things I’m chasing right now it isn’t funny!

 

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Not all, of course! Ha!

Anyway, my ovary whatever seems to have resolved itself, so I’m not being attacked from the inside, but my abdominal muscles, the whole of my abdomen feels like it was removed. Remember that doll, Skipper, that was pregnant? You could take her abdomen off? That part is burning fiercely.

It feels like someone has taken a blowtorch and actually removed that part of my stomach. I have no idea why. The surgeries I’ve had in the area are gallbladder and appendix, are they enough to cause that pain? Oh and two c-sections.

Once again, I’m back to eight days from my shots. Botox for migraines and EDS. So my back is aching. My low level

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Chris O’Dowd looks so much like my husband. Back in the day. He’s neater now. 😄

headache is ramping up, and my neck is really sore. I’m back to the nausea and headache and dizziness problems I had before. When I was in so much pain and couldn’t move, I wasn’t thinking about how ill I felt. Now that I’m on less medication and am upright and have peeled away a layer of pain I can feel it. The problem is, it’s not bad enough to be debilitating,  but it sure is bad enough to make me grouchy. I’m trying to be kind, but I don’t like myself on days like this. 😦 I’m watching some comedy and staying isolated to try to help.

Almost there!

It’s supposed to rain off and on this week, and that never helps. I’m going to play with some Maybelline makeup  #igotitfree through @chickadvisor. Pretty awesome. Then, a nap!

I am not going to have the strength to talk to people I think. I won’t be able to censor myself. I snapped at my son yesterday for no reason. It’s not fair. I’m too worn out. I’m trying to catch up on blogs, but it’s all I can do to press like sometimes. I don’t get there, some days.

No, wait. I did have a reason to snap at my son. But it still wasnt fair. I asked him not to come into my area while I was trying to fix a problem and he did anyway because he is autistic, and I am in pain but trying anyway. I made a mistake and apologized. He made a mistake and apologized. Better.

Okay. Need to conserve spoons.

Stay strong, Zebra pals! 😘

New Attitude

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I’m not gonna lie, the death of Chris Cornell has hit me hard. Aside from the usual fangirling, the man was only 5 years older than I am.  His voice is just something that moves me like nothing else. I’ve been randomly bursting into tears. But it really has brought about some changes and reflection.

Honestly, everyone, absolutely everyone has baggage we can’t

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Chris Cornell 

see. So why is this world becoming so very hostile? I truly don’t understand, but I am not about to be trampled any longer.

All my life I’ve tried so hard to be wonderful, to be accepted. To have friends. To be loved and nice and well thought of. What has it gotten me? Some truly outrageous behaviour by some people. 

  • A person I went to  high school with lectured me in front of a group of people at my 20 year reunion about what a stupid mistake it had been to marry my ex-husband.
  • My mother in law tried to convince my husband to take our two kids and leave me because I was sick. She was convinced he could find someone ‘well’ to look after him, because that’s what he deserves.
  • She also refused to have my name put on the car insurance for the car they essentially gave us because she didn’t want me driving it for ‘fun’. I wanted to be able to take the kids to hospital if need be. Husband threatened to return the car. I never drove it anyway. I’ve given up driving because of my medication.
  • My ex husband offered his business associates the opportunity to have sex with me in lieu of the money he owed them. I found this out years later. I was not complicit.
  • I chose a certain woman to be matron of honour at my wedding, she told me many years on another woman was so bitter about not being chosen she complained the whole time. Why did I have to know? I was friends with the complainer for another ten years before we had an ugly breakup where she accidently sent me an email saying ugly things about me.

So, my point is, if I’m getting this treatment after trying my hardest, why am I trying so hard? This is, of course, not an exhaustive list. I don’t know why I inspire such hatred sometimes. Such loathing. My good friend’s husband still hates me 20 years after I had to drop out of their wedding. I don’t think he gets that my then husband took every dime I was making and was alienating my relatives. I couldn’t go to them. I still cry at night over that.  Why do people seem to think I’m unaware of the stupid things I’ve done? Or maybe there was good reason?

I’m sliding into a mode where I can only do for me now. I wake up. I coffee up. Med up. Breakfast. Vape. Get some makeup. Why do I makeup? Internet likes? No. But it’s fun to show my work. I like to zen out. I can relax. Be creative. And I can touch a part of myself that doesn’t hurt. My face. It takes two sometimes three hours to get my face on and photographed. Not because I’m slow, but because I need to rest so much. I lie down and get my pressure regulated or rest my hands. Then I nap. Dinner, visit with husband, bed. Meds in there, interspersed. My kids visit. They’re pretty independent. They need me, though. Don’t get me wrong.

Frankly, the way I’m feeling, I could really sleep all day. Every day. But really, that’s no fun at all.

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EDS Awareness Look

My head and neck are still bothering me, and are really ramping up, in fact. Yesterday was bad. I did a makeup look for EDS awareness month, and I was so tired after. I wanted to post to the blog, but I was going to have a quick nap. Four hours. Probably best that I didn’t. It would have been angry.

I have been wracking my mind. If your relationships are all crap, you should really look at the common denominator. That’s me. I need to change something. Everyone can’t be a jerk, right?

I do have some very loyal friends, however. Don’t think my life is bleak and terrible. Oddly enough, they almost all seem to be nurses or have chronic illnesses themselves. I am constantly amazed at my husband.

I often wonder: do I not share enough? Am I not upfront enough? Am I too retiring? Am I too pushy?

But you know what? I can’t anymore. I just need to live. I will continue to be kind, as always. Respectful, of course. But I can’t work so hard anymore. I need to focus on myself. I need to focus on me. I’m project #1 right now. Family is second. I used to worry there would be nobody to attend my funeral. I can’t anymore. I can’t worry about my afterlife when I’m not even living this one. Such as it is. It’s mine.

I need to build it.

Have a great day, fellow Zebras! 😘

My Wonderful Husband 💙

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Things got a bit awkward? no, unfortunate last night. My darling husband and I started to snuggle, and we got about as far as Marge and Homer in the above .gif, only we were still wearing our matching pajamas (yes, every year at Christmas I buy the family matching pajamas. We are Canadian and it’s May, of course they’re on!) when suddenly I had the blinding head pain and nausea return. I was so upset. I’ve been in too much pain to be intimate for so long. Of course he understood, and just held me. He has to stop being attractive, too, though.

I was thinking if I should ask him if I could tell this story, I paused and I could almost hear him say “Why? It’s facts!” I started to cry. He’s so wonderful. Of course, just then my kids burst in with early Mother’s day gifts. They had a makeup brush I wanted and deodorant in a particular scent. They bought three sticks! My son informed me. Also, I stink. They wanted to know why I was crying, of course, so I told them it was because their dad was wonderful. They were fine with that. My husband rounded the corner shortly after and I had a chance to ask him if he would be embarrassed if I shared the story of last night. “Why, it’s facts?” He said.

Yesterday I just slept all day. I had stuff I wanted to do, but a two-hour nap turned into three, which became five… I think it was good. The pressure in my head was bad, and I needed to relax. My husband suggested I sleep in again today, but I thought if I did that I might not get up at all. When am I going to accept that he is always right? I did some makeup stuff, but the photos are awful. If I don’t feel good, the photos don’t turn out. Waste of time if I can’t show off. Or if I cringe looking at the photos.

Right now my head is throbbing and my jaw really hurts. I overdid things. My pubic bone hurts, too, likely from sitting up so long the past few days. I ache all over. I can’t remember much of any conversation. Watching TV is futile. I can only watch reruns of animated stuff I’ve seen a million times. I can’t follow other stuff. Law and Order was really bad. Archer is baffling to me. I keep calling him Bob. My husband watches sports beside me on his tablet. Or we watch together.

Ha! Husband just ran in, gave me a kiss and ran out again.

This head thing is really frustrating, but my husband really cheers me up. So glad he’s in my life. 💙

For Mothers day (because my husband is such a terrible speller, we refer to it as Mothra’s day, and of course Fathead’s day. Although that may have come about as a autoreplace suggestion. 🤔 My husband is a Fathead, yes he is! Full of knowledge!)

Anyway, I haven’t really been feeling well enough to do anything for my Mother, so in appreciation, Mom, if you are reading this, I will not take you to see Snatched this weekend, that atrocious looking movie with Goldie Hawn and Amy Schumer. My Mom works so hard looking after my Dad, she deserves major snaps, because she has her own challenges, yet she cares for him tirelessly. I’ve long felt it’s easier to be the patient than the carer. I know I would have bailed long ago.

I’m feeling really frustrated with this stupid head pressure affecting things so much. I didn’t even vape yesterday because inhaling was going to hurt too much. That’s not good. I’m frustrated it’s taking from the tiny amount of leisure I was afforded. I don’t want to have to give everything up. I’ve had to give up so many hobbies already.

I’m scared it will come down to choosing between functioning and being comfortable.

Have a great evening, Zebra pals! 😘

Friday!

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Why do I still get excited for Fridays? I haven’t been able to work in nearly fifteen years. You would think maybe my family hangs around more, but they really don’t. I bet it’s the chicken fajitas we have on Friday night and the snuggling and animated shows on Sunday night. The Simpsons and Bob’s Burgers! Oh! Chocolate chip pancakes on Sunday morning! Mmmmm.

My head is hurting less and less. I’m learning to live with this burden. I’ll have to name it. As long as I ensure I lay on my side every hour or so, for at least a half hour, don’t put too much pressure on my neck in general, so no actually holding my head up if I don’t need to, propping up with pillows is preferred. My memory is lousy. I can barely follow conversations, and television plots are very complicated to me. I was trying to find something at an online shop yesterday, and I could not find it. I looked this morning, right there, plain as day. I’m really overdoing things as I’m pretty bored. I don’t want to interact with people because it’s confusing, and I end up getting frustrated. I only want my nuclear family, they understand sort of.

It’s rather like being drunk. You get worse as the day wears on, more tired, more disoriented, dizzier. Napping helps, but it doesn’t quite fix things. You need a full reset for that.

I’m still sort of in hideout mode. It’s most comfortable.  I wish I could read, though. My eyes are wonky and I’m not retaining info. Plus that tiredness thing. Reading would be awesome.

Half of me wants to play with makeup, the other wants to nap all day…

Sigh.

What kind of life is this? I feel like once I get well, THEN my life can begin. But no, this is all there is. I’m sure there is meaning somewhere.

 

Have a lovely day, my Zebras! 😘

Later that day…

I’m feeling a bit better after a nap, but I am still in a lot of pain. My eyes are really sensitive to light. My flipping teeth hurt.

I am feeling really isolated and alone. Facebook is just nasty lately. Not personally, but it’s so negative. You can’t express a point of view without being slammed with the other point of view. And if you differ? Good bloody luck to you! Yikes! I’m done.

I don’t have the support I was searching for. I really don’t know what I’m doing wrong. I don’t know what makes me so unlikeable. I try really really hard, but I’m always that person on the sidelines. I don’t mean to sound melodramatic. I remember one of our extended group had cancer, and such a fuss! People sent her care packages and knit her hats… I don’t want things… but an email? That would be cool. And not from my mom tied with obligation. My mom tries to be there, but she follows me everywhere on social media, not understanding it feels like a burden.

I feel like deleting everyone but me on Facebook and keeping the memories of all the funny stuff my kids did.

It’s really dark in here, and not just because the lights are off.

 

On the plus side, I’m covered in melted chocolate and popcorn. I get cravings with the migraine. Probably not the best for it, but at least I went down swinging.

 

UPDATE: I  took my medication and I just wanted to clarify a couple of things.

I want my mom to be my mom and my friends to be my friends. It’s not that I don’t love my mom, it’s just not her role, she needs to be in her place. I can’t have her out of place, it’s too much for me to cope with. I could be babbling at this point..

I am not sitting back and waiting for people to call me, usually. Now, I am, as I’m incoherent. In the past I didn’t.  Also, now, I’m just not sure I’m much an asset. Be my friend! I will whine about my pain and pass out! ( attempt at humour) though there are those who are silently there, I know.

I think maybe I’m just a mess at the moment. 😄🍫🍿