My Wonderful Husband πŸ’™

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Things got a bit awkward? no, unfortunate last night. My darling husband and I started to snuggle, and we got about as far as Marge and Homer in the above .gif, only we were still wearing our matching pajamas (yes, every year at Christmas I buy the family matching pajamas. We are Canadian and it’s May, of course they’re on!) when suddenly I had the blinding head pain and nausea return. I was so upset. I’ve been in too much pain to be intimate for so long. Of course he understood, and just held me. He has to stop being attractive, too, though.

I was thinking if I should ask him if I could tell this story, I paused and I could almost hear him say “Why? It’s facts!” I started to cry. He’s so wonderful. Of course, just then my kids burst in with early Mother’s day gifts. They had a makeup brush I wanted and deodorant in a particular scent. They bought three sticks! My son informed me. Also, I stink. They wanted to know why I was crying, of course, so I told them it was because their dad was wonderful. They were fine with that. My husband rounded the corner shortly after and I had a chance to ask him if he would be embarrassed if I shared the story of last night. “Why, it’s facts?” He said.

Yesterday I just slept all day. I had stuff I wanted to do, but a two-hour nap turned into three, which became five… I think it was good. The pressure in my head was bad, and I needed to relax. My husband suggested I sleep in again today, but I thought if I did that I might not get up at all. When am I going to accept that he is always right? I did some makeup stuff, but the photos are awful. If I don’t feel good, the photos don’t turn out. Waste of time if I can’t show off. Or if I cringe looking at the photos.

Right now my head is throbbing and my jaw really hurts. I overdid things. My pubic bone hurts, too, likely from sitting up so long the past few days. I ache all over. I can’t remember much of any conversation. Watching TV is futile. I can only watch reruns of animated stuff I’ve seen a million times. I can’t follow other stuff. Law and Order was really bad. Archer is baffling to me. I keep calling him Bob. My husband watches sports beside me on his tablet. Or we watch together.

Ha! Husband just ran in, gave me a kiss and ran out again.

This head thing is really frustrating, but my husband really cheers me up. So glad he’s in my life. πŸ’™

For Mothers day (because my husband is such a terrible speller, we refer to it as Mothra’s day, and of course Fathead’s day. Although that may have come about as a autoreplace suggestion. πŸ€” My husband is a Fathead, yes he is! Full of knowledge!)

Anyway, I haven’t really been feeling well enough to do anything for my Mother, so in appreciation, Mom, if you are reading this, I will not take you to see Snatched this weekend, that atrocious looking movie with Goldie Hawn and Amy Schumer. My Mom works so hard looking after my Dad, she deserves major snaps, because she has her own challenges, yet she cares for him tirelessly. I’ve long felt it’s easier to be the patient than the carer. I know I would have bailed long ago.

I’m feeling really frustrated with this stupid head pressure affecting things so much. I didn’t even vape yesterday because inhaling was going to hurt too much. That’s not good. I’m frustrated it’s taking from the tiny amount of leisure I was afforded. I don’t want to have to give everything up. I’ve had to give up so many hobbies already.

I’m scared it will come down to choosing between functioning and being comfortable.

Have a great evening, Zebra pals! 😘

Friends (do do do doodelly doo)

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It has been said every seven years one undergoes major life changes. Or maybe that’s Scorpio. It’s held fairly true in my life, anyway. I turn 47 in November, and my life is undergoing some real flux. One major area this is occurring seems to be friendships.

I’ve had a complicated relationship with making friends most of my life. Both of my parents have mental illness issues, and were constantly coaching me on how I should be interacting with my friends. How I could be doing better. The other messages were that I’d better hang on to any friends I get because I’m ‘ugly, stupid, and weird’. I think the motivation was to keep me from having a big ego, but I was crushed. The pain I was in with the endometriosis every month, plus my EDS pain, dismissed as ‘growing pains’. I started working at age 12, since my parents decided I should pay for everything. They would provide the room and food, which I rarely ate because I was already having stomach problems, and I bought everything else. They provided an allowance of $60 a month I think.

I barely had time for friends, but clearly I had to do whatever anyone asked of me, because that’s what friends do, right?

Set me up for 30 years of misery.

In my 20s I worked three jobs, I didn’t really have time for friends, I eventually moved away from all my high school friends, being nuts while on opioids alienated most of them. Some hate me because of my ex husband. Most have no idea what it was like growing up in my house. The suicide attempts.

When I was in my 30s I joined a baby names board. It was fantastic. I had a tribe. Until someone decided I was an addict and called me out. Nobody defended me. Lost a lot of people. I wasn’t an addict, but was on those damned short acting opioids that weren’t that great. Dependent yes. She was saying I was Rush Limbaugh.

Our friendships moved to MySpace then to Facebook. I got closer to some people. I was still mobile, seeing people at Meetup.com and having friends. But all my guy friends were still handsy, and my girl friends all required gifts and only talked about themselves. But that’s the cost of having friends, right?

I hardly go on Facebook now. I mean, a couple of times a day, vs sitting on it like before. Before, I used to chat with friends, but now everyone just wants to argue or sell you something or have sex.

I used to post on friends’ statuses, but now their friends want to aggressively argue with me. Or criticize. Or completely ignore. I don’t think it’s personal, I think it’s what the place has become.

A bunch of my friends have drifted away. The bunch that I talked to on a regular basis. What a strange coincidence. This hasn’t left me friendless, of course. But the ones I have remaining aren’t the ones you speak to every single day.

But you know what? I feel peaceful.

I feel like I’m not pretending to be someone I’m not. I’m engaging with people in small bits. I’m not overwhelmed. I’m not angry. I’m not listening to people’s problems.

I am able to engage with people I care about.

Perhaps it is just that I don’t have the energy right now to be more to anyone. My son has been coming for snuggles each night and it’s wonderful. Β We need the connection. I owe my Mom a phone call, but I just don’t have the energy.

I’m finally learning to set boundaries.

I’m trying to let myself not feel guilty. There’s a stupid tape in my head about having to be social. It’s idiotic.

Maybe we will drift back together, maybe not. Maybe we’re just keeping different hours right now and things will change. Maybe they are ghosting me. I’m focusing on what I can control. Those who are responsive in my life, and what I can do to be comfortable.

Am I horrible?

My headache is subsiding, I just want to sleep πŸ’€πŸ’€πŸ’€!

Have a great day Zebra pals! πŸ˜™

PS, I was having a ruminate about what bothered me so much about the men (and women) being forward on Facebook messenger. Β There are two things. First is it’s rather like being cold called in your messages. Another telemarketing tactic? Although, with the amount of sales going on, yeah. And Second, you are treated rather like a non person. As I move through life having things explained to my husband, being shoved out of the way in my chair, it feels really great to be reminded I can’t even participate in the dirty nasty with my own husband.

Maybe it would make me less grouchy? πŸ˜‚πŸ˜‚πŸ˜‚

So Hungry!

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I am so darned hungry and so darned nauseated at the same time! I really want a hot meal. I want French fries smothered in disgusting gravy and bacon and sour cream. Yesss.

I didn’t receive quite as much pain relief today, but enough that I was able to play makeup for a while. I had fun, and my back didn’t hurt much. My neck was killing me, though. It’s funny, pain is like an onion. You clear one ache up and there’s something lurking underneath. I think it’s our brain’s way of coping. I don’t think we can cope with it all at once, so our brain stacks the pain. I don’t know, it’s just a theory I have.

I didn’t have a nap today, surprisingly. I’m ready to drop now, but I pushed through today.

Today is pretty boring. I’m feeling pretty boring. I’m out of energy. I don’t have the spoons. I can barely move my fingers. My stomach is growling noisily.

I even started a book the other day. It’s good, I’m enjoying it. I miss reading.

Hope you’re having a good day!

Happy spring, Zebra friends! πŸ˜™

 

 

Mixed Emotions

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I have the feels again. These are mostly anger and shock. I’m finally vaping the higher dose THC pot this morning. I mixed it with just a bit of my regular stuff because it has certainly little cannabinoid in there and I wanted it to be something substantial, not a desperation experiment. Well, here I am, and my back doesn’t hurt finally. I don’t feel stupid. I feel tired, but relaxed. Cold. My pubic bone hurts. My hands hurt. I don’t feel like sitting around playing video games. I feel productive. Artistic. Comfortable, almost. Getting there. I’m hungry.

I know I’m angry. Angry that I was kept from pain relief because… why? I can’t be in as much pain as I say I am? I must be a drug seeker? I remember joking with a (male, ironically) friend about us potentially being roofied, and surprising some guy/gal by saying “ooh, I feel great, do you have another of those things you slipped in my drink?” πŸ˜„ I’m one of those EDSers that is tough to drug. I used to blame my weight, but I don’t think that’s entirely it. I seem to have a high drug tolerance.

My body has been feeling not hellish for five minutes, it’s been nice. I have been struggling through. I put together a post for the beauty blog yesterday. It took me all day, but it gave my day some structure. I took a couple of naps, rearranged some things on my computer, watched TV. It was nice and peaceful. I remember how my parents used to nag me about making friends and being friends and going outside, and I have brief moments of anxiety that I’m not talking to enough people. But then I remember what happened last time I spoke to people, and I hide under the covers.

So, to recap, emotions: anger at my old pot doctor for withholding working drugs from me, gratefulness to my new pot doctor for listening and caring, anger and hate toward my genes for this situation to begin with, happiness at the momentary relief, annoyance at my internal dialogue, bliss at the momentary silence.

I was so out of it with pain the other day my husband came over to help me fid something. He handed it to me and I actually said, “Good Boy!”. WE DO NOT HAVE DOGS!!!

My Botox treatment is on April 4th, so that is one week. I just need to hang on a while longer, and we start the circus again. I can feel the pain in my head returning, I’ve had a slow, dull headache for a couple of days now. My neck and jaw just ache.

I want to crawl out of my body. Just leave it behind like an exoskeleton.

Wishing you a great day Zebra buddies! 😘

The Sleep Monster!

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The sleep monster has had me for the past couple of days. I start nodding off around eleven am, I get up around six am, so five hours isn’t bad… I decide to lie down for an hour or two and I end up sleeping for six or seven hours. I wake up just in time to have a small snack and go back to sleep. It’s very disheartening, because there are so many things I would like to do. We always hope this is temporary, but you just never know how long it’s going to last.

When these sorts of things crop up, we have to make decisions. Decide what our priorities are. Our worlds get smaller. We have to decide what to keep and what to cut. It’s not easy. Friends tend to pull away. I’m to weak to worry right now.

I’ve lost another five lbs. I’m on the verge of 200 at 202. I’d love to break 200, but I’m worried. This week was due to nausea and sleeping through dinner. Five lbs a week is also too much. What can I do? I eat when I can.

I am scheduled for Botox injections on April 4. That should help. Until then… I did receive the stronger Cannabis, both in THC, but mostly CBD, but husband needs to grind it, because even though it’s milled, I like it finer. Picky, picky!

This has taken a lot out of me. I need to rest. Soon.

Happy Zebras! 😘

Do Cookies Have Brains?

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OK, Β so the reason I’m asking is that I feel like I’m eating a lot of cookies, but I also feel like a zombie. So this only really makes sense if Cookies have brains.

I am feeling so tired right now, but I want to play with my makeup. I have a plan, and I’m not going to give up, even though I keep snapping Β my neck awake every few minutes. This exhaustion is just rude. I tend to eat cookies when I’m this tired because I think the sugar will help me. It just makes me fat. What I really need is a nap. I really should just sleep because I’m just going to be frustrated. πŸ˜” I’m so upset. I want to do things, but I’m so tired almost all of the time. I keep having to postpone things. Β I will try and get up at 3:00 and see if I can do it then.

I’m also having problems with bedsores. It’s getting annoying. I’m going to have to start wearing a bra again. That’s upsetting, because it binds my stomach. It hurts. I have had terrible heartburn and nausea has worsened lately. I’m eating even less nutritious food and more cookies. Everything hurts my stomach.

Okay, I’m going to nap now. The weather is cold. It was -25C overnight. Rest time.

Be good to yourself fellow Zebra! 😘

Self Care

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I have been trying to catch up on reading blog posts, but I can’t focus long enough to read through a whole post. I have a great makeup idea, but I am just too tired and sore. I have things for the Instagram and my blog for tomorrow. I can throw my Beauty Blog post together in 45 minutes, will anyone notice if I don’t post? πŸ™„

I’m going to try to read, then nap until my kids leave school. I’m shaking. After they are home I will decide what’s next.

My toenails may not get painted today, unless I need the stretch.

So worn out I’m seeing double! Β I don’t hurt if I don’t move. Okay, maybe I will read when I wake up…

Be kind to yourself Zebras! 😘