Dark Days

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I have never felt so dark as I have the past few days. The pain just feels never-ending. I don’t feel like there are any bright spots anymore. The tears keep falling. I know this is a temporary state, but damn, it’s no fun to go through.

I try so hard to be stoic all the time. I try to pretend I have this. It’s no problem for me to lie in bed all day every day and play on the computer. But it’s a huge problem. People don’t realize, I think, that when everyone on Facebook decides to have a shitty day, I don’t get to go outside and find other people to talk to. I’m stuck with what I’ve got.

I’m trying not to turn this into an ‘everybody is being mean to me’ because that is certainly not the case. I know I’m very sensitive right now, probably not safe for human consumption, and feeling very left behind, and I have no way of communicating this without feeling like I’m whining, because I’m in too much pain to do anything but whine.

I feel like my soul is being slowly ripped from my body. I just want this to end.

I was thinking yesterday, I would love to just have a day off. To just hand over my pain for a day. But whom would I burden with that? Oh, you know my first choice. Someone who needs to make decisions on health care reform. But is there someone else who needs to know what this is like? I couldn’t even do this to my ex-husband. I don’t particularly hate him, but sometimes, you know, I think he was kind of clueless.

My good friend is chronically ill. She’s lovely. She always says this thing, though, that interests me. When she’s talking about her pain she says, “but it’s nothing as bad as yours.”. She’s not the only one who does this. It’s so interesting to me because to me, pain is so individual. It may be that I’m a big wimp 😀. It’s almost not how much pain hurts, but how much it disables you.

My husband just interrupted me for a conversation. He is home today because he had a sleep study done last night. When he originally booked it, he thought it was the Family Day long weekend. I’m vaping as I blog, so I’m feeling better as I go. I’ve spilled my guts to him, and we’ve decided to cancel my dentist appointment for this afternoon. They are so darn good to me. They allow me to cancel and fit me in when they can. The weather is terrible. Snow and ice. I can’t get over the snow banks on a good day, but the ice? We have to try again. I really need a new bite guard.

So, my husband thinks I should medicate myself as much as I am allowed. Then take a warm bath. He will ensure I’m okay, and I don’t stop breathing. I mean, I’m not taking the same things as Michelle McNamara, but Patton Oswalt pulls at the heartstrings, ya know?

Our neighbour’s young daughter knocked on the door this morning to say ‘hi’. She informed my husband her father was at work and her mummy was at work. My husband told her he was at work (liar!) because sometimes they let him work from home, and our children were at school because it was Monday. Her eyes got big and expression was surprised. “Monday!” She repeated. He heard her grandmother start to frantically start to call for her two doors down, “Grandma, I’m visiting my friends!” She called back as she scrambled down the stairs.

Husband came up and began to tell me the story. We heard frantic banging against the door, as if someone were throwing their whole body against it. “Goodbye!” She called as he opened the door, “Grandma’s taking me to school!” As she flew down the steps and down the walk.

He also reminded me that it’s February and Valentine’s day is coming up. This may explain the rash of sudden expressions of love (or whatever) and some of the grouchiness. I can totally get that! Whether it’s being just sick of winter in general, or hating Valentine’s day, whether in or out of a relationship, February is a tough month.

Sometimes it is straight out hostility. It’s so funny, too, what people perceive about your life. I know I’ve lost at least one close friendship over jealousy of my relationship. It is incredibly sad, because I just figured it out recently. If this woman could only see my life now! I guess it seems great on paper, doting husband, two kids (who happen to be awesome), good drugs, lie around all day, play with makeup… but where does the horrible isolation fit in? The feeling everything you say is completely stupid and pitied? The aching in every part of your body every day, including your pubic bone? Doctors constantly questioning your mental state…are you depressed? You seem depressed. Of course I’m depressed you fucking nitwit! But this is temporary. This dark mood. They come and go.

Stay in the light, my mutant collagen cousins! 😘

More Feelings

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Wasn’t it just three weeks ago I was all tearful and sobbing? Yeah it was. I checked the date, January 21, 2017. Here I am feeling like an idiot again. This is kind of hard to explain to people who don’t have chronic pain, and maybe this is something that is really unique to me, but let me try to explain how I feel. Firstly, my body feels like I was in a bar fight last night, with the Montreal Canadiens. And Tie Domi. I also feel like I may never ever stop feeling like this. I worry I’m starting to become a burden.

People tell me “don’t be silly, or don’t think so negatively!” I’d rather have evidence that I’m not a burden.

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Then, when I get onto social media and everyone is sniping, speaking condescendingly to me, missing obvious hyperbole, being obstinate for no purpose… I find myself ditched by people I had admired… my feelings are hurt, but not in a “whyyyy?” way, but in a “am I really this out of touch?” way. It makes you rethink people you had associated with and trusted. I continue to place my trust in the wrong places and be burned. I fight the urge to pull back because it is not going to be advantageous in the long run. Only if I continue to put myself out there, will I make valuable connections along the way. Some tears will be spilled. But if we’ve experienced no failures, it means we’ve taken no chances.

Maybe I’d be stronger on a better day. Today I feel like everybody thinks I’m an asshole. Which doesn’t mean they don’t like me, but that I’m really not that bright. I do get that a lot. Thinking about it now, it only bothers me from the few people who know me and think this anyway.

It’s as if makeup sucks the intelligence out of your head. Dare to show an interest in artistry, and God forbid a concrete thought enter your brain.

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I don’t know why people who have known me for years don’t ask me questions and instead get defensive. If I say something that comes off mean, I’ve probably missed a word! Or a sentence! I don’t think I’ve ever said anything deliberately mean to anyone. So why don’t people ask me? It’s not like something actually happened recently, it’s just this has been on my mind.

My Mom sent me an email around midnight last night saying her skin was itchy and flaky, so I called her today, and we went over some options. I think Husband needs to stop at the drug store to get some things and I will ship it to her since she can’t get out because of looking after my Dad. I have the nicest man in the world! I just talked with him and he was so accommodating!

My husband and son are out shopping for shoes for the kid and getting Panda Express for dinner. It’s off my diet, FODMAP, but what’s more pain? That orange chicken is worth it! I was in labour for 96 hours with that girl! Oh, this is my daughter’s birthday dinner. We are starting early and snacking all day.

It’s super snowy here today, so I know that’s making things worse. 😣 My pain gets bad in snow, and awful when temperature fluctuates.

I should go play with some makeup, that ought to make me feel better. Maybe.

Have a bendy day, zebra friends! 😘