Lies I’ve Been Told…

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“Looks aren’t that important in life, it’s what’s inside a person that matters.” …

“I am your friend,”…

“That looks great on you!” …

“You’ll regret it!” …

“I’ll never tell anyone, I swear!” …

“You can count on me!”…

“This medication is non-addictive.”…

“I would never lie to you,”…

“I love you!” countless…

“If you lose weight you’ll feel better!” x infinity…

“Your doctor will call you back in three days…”.

“Your doctor will call you on Tuesday.”.

(Sigh)

Now, to be fair, it seems the clinic is moving floors. It essentially broke down earlier this year (at last check, admittedly a bit ago, only complaint with my doctor who ran clinic is about paperwork. Will keep you posted. Must have hubby do checking am too weak),  and it seems to have merged with another pain management service. My new doctor, who was only in this clinic once a week anyway, has not been in, due to the chaos. I have confirmed the scan is on my file. Now, I don’t even know if the doctor to administer the blood patch is still on staff. I caught a quick article up online for only a couple of hours that stated there are no doctors in my home city to treat chiari if it turns out to be. I will burn that bridge when I get to it, but I am pretty miserable here. I essentially lie in the dark most of the time. The straighter my neck the better. My vision is very bad. My tablet is turned way down, as is the tv. Very dark. I can’t stand noise. So it’s not always watchable or useable in the tablets case. Last week was great- I could sit horizontally and play with makeup for a little bit! Have a rest. Organize some items I had tossed aside when feeling terribler. So much better than lying on my side in the dark. I have incredible trouble sleeping, so I stare into black space for hours. It can be awful. And the facial pain. Ay-yi. And the back pain so bad you almost faint, but you don’t.  Because you’re home alone. On really good days I get to sit up for a while before the pain starts, the nausea and dizzy take over. On really really good days you can turn on a lamp.

The EDS Clinic said I could be in to the pain clinic there by the end of June, so hope oozes from every pore! No, I am grateful as I’ve been inappropriately medicated for a long time. I would like to sleep, maybe? Once a week? My former pain doctor had been planning to change my plans for medication for a while, as he suspected I might be causing myself pain with what I am on. (Apparently it’s a thing) Plus it has been a year since I have had proper migraine shots, so dealing with intermittent migraines, too. Fun! 😄

Oh, and a lady from Chiari Canada has been so lovely and supportive in corresponding with me, even though she is so busy. I appreciate it so much.

My rugrats gave me their flu or cold or whatever… I am not amused. I shall take my whiny butt back under the blanket.

I shall let you know.

 

 

Happy Monday! 😉

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I had a pretty darn good weekend! I managed to accomplish quite a lot, all while giving my carpal tunnel a bit of a rest. I mean, I assume it’s carpal tunnel. My GP told me it probably was years ago when I first complained about it. Now that I say this, it had to be over 20 years ago, and he didn’t even examine me. I really need to get this checked.

So, on Friday I received a Vox Box, which is sent out by Influenster.com. You get to try out things and review them on

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Playing with the vampy Bite amuse bouche in Whiskey,  liner in 044

different sites. I get to review Bite Beauty’s new lip pencils. They are amazeballs. On Saturday I was able to do some makeup try-on for my other blog after a nice long bath, and I tried ALL THE LIPSTICKS! It was a blast!

I woke up around my usual time of 10:00, dozed until 10:30, breakfast, coffee, vaping, bath. So I didn’t really get going until after 1:00, closer to 2:00. My son saw me in the early afternoon, and then came by at 7:00 and I was still taking pictures of myself! He must have thought… What the? But I explained that I rested, I changed my lipstick every few pictures so people can tell what it looks like! “Oooh!” He said!

Sunday was so productive! I was able to edit some of the photos I had taken. I caught upon some news during my morning vape. I love Sunday mornings, hubby makes chocolate chip pancakes! They are so good!

While catching up with things, I found out one of my newer friends is having a crisis. She had her heat shut off because she made an arrangement with the heating company or whomever and whoops! Not in the system! I know so many who are screwed over like this. Of course the CSR is lying to her because everything is recorded, but you can’t fight them. They have all the power, literally. So we got together and helped. It’s tough, because so many need help. We do make some money, but we are spending so much now, too. Son has two therapy appointments a week now, at $200 each. I go 2x per month, daughter should go every month. Then there’s living in one of the most expensive cities in the world. I don’t go out socially, so, save money there. Anyway, I just wish I could do more.

So, my daughter’s birthday is coming up, speaking of money, and we hadn’t bought her anything yet. I saw the cutest t-shirt I thought she would like, and then found one for myself, and then she wanted another, then one for her friend. They were starting at $12 USD, which is how we got suckered in. So we bought some adorable tees. Then I bought her some pants from the Gap. It’s one of the few places I can order online for her that carries tall. She is 5’9″ and wears a small PLUS she is all leg. She needed them. I had to buy myself some, too, as none of my pants fit me anymore. I ended up buying 2 pairs of jeans and a pair of ‘joggers’ although I wanted some pants. I can’t seem to find pants that are neither too casual, nor too dressy, and come past my ankle. Am I too demanding? No rips, no shiny, full length.

When I lost all that weight over the last 2 years, my pants didn’t seem to shrink much up until just recently. I went down two sizes when I ordered and they were still too big. One of the sizes I bought was a 16! I hope it fits! I am 5 lbs away from being under 200 lbs 😮

Sunday afternoon my daughter and I watched the Beware of Slenderman Documentary. I was so disappointed! It was really boring! It didn’t go into anything. I knew as much from skimming a couple of articles and reading a couple of links on Slenderman.  I do not have a huge knowledge of the Character, but I didn’t come away feeling like I knew anything more than I did before. My daughter left halfway through. The interviews with the parents of the girls involved in the Slenderman Stabbings were interesting, the testimony and interviews of the girls were interesting, but you felt it was leading somewhere it wasn’t. Ah, darn.

My boy spent some time with me both on Saturday night and last night. He’s a great cuddler. He said on Friday night, “if I got to choose my Mom I’d choose you a million times over!”

Hope you had a fantastic weekend! It’s supposed to be freezing here in Toronto for the next couple of weeks, so I am not looking forward to that! Hope you’re comfortable where you are! 😘

Ultimate Lazy Sunday

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Today did not work out as planned. I had every intention of actually accomplishing things today, but I only got to a few of them before the nap monster caught me.

It really started last night. My husband and I planned to snuggle. I know what that means on the Simpsons, but to us, that means actually hugging each other, talking, spending time together. I’m too sore for much else. At about 6, I started getting nauseated and hot, and my head hurt. I couldn’t eat, and finally took some Gravol and calmed down my body’s reaction. My body was so cranky, I couldn’t bear to wear clothes.

I set my alarm on the weekends, as there have too many weekends I’ve slept until mid afternoon. No one around here can bear to wake me up. So my son (he’s 12) came and sat with me for a while. He wanted to cuddle, but I could only let him put his head on my shoulder. My body just hurts so much. I finally had to go back to sleep. I ended up sleeping for another 4 hours. I’m ready to go back.

This pain is making me so tired. Two more sleeps until treatment.  Or just one if I sleep right through!