Gastroparesis Awareness

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Lovely, I was just reading a post on Twitter from the EDS Association reminding us it was Gastroparesis Awareness month. I replied I was pretty sure I had this, was awaiting diagnosis. Someone snarkily replied it was dangerous to diagnose yourself from the internet, and did I have tests scheduled. I replied I was trying, I had other priorities, which got, if you’re so sick, you should have your priorities in order. My retort was about needing my energy to bug my pain doc about my neurologist at the moment, but under normal circumstances, definitely.

It’s such a shame there are so many scammers out there we have to be suspicious of everyone. That really sucks.

I got partway into my makeup and just ran out of steam. I couldn’t go on. I’m dead. I hate using that analogy, but my lips are pale and I’m drained. I feel awful.

Anyway, back to gastroparesis. I have almost all the symptoms. It involves very slow digestion. I will eat at lunch, still be full at dinner. If you overeat, sometimes you vomit the remainder up. I am not doing this much anymore. I have a very small appetite, am constantly, well mostly, nauseated. My stomach is often bloated. Constipation, cramps, constant heartburn. I can’t think of much else.

My current diet consists of:

  • My morning coffee
  • Oatmeal for breakfast (the bad kind)
  • Homemade nachos with corn tortilla chips, melted lactose free cheese and low fat sour cream
  • glucose-fructose free iced tea
  • gluten free pizza
  • Chicken Tacos
  • Chicka Chicka Boom popcorn
  • Rice Crackers
  • Homemade hamburgers
  • Homemade hash browns
  • Chocolate (This is not necessarily FODMAP friendly)
  • Chocolate chip pancakes with syrup

 

  • I have been munching on lightly salted chips the past couple of days, as it quells the nausea. It worked during my pregnancies, my first one I lost 30 lbs! I was still 30 lbs heavier than now! 😮

This is all the food I would eat in a normal week. Other things we have in the house I can have are:

  • Lactose free ice cream
  • sorbet
  • Rice pasta with garlic and onion free sauce (gag)
  • Husband has a mini storeroom of chocolate in the basement, apparently.  For me.

I love my chocolate and popcorn, but I don’t miss my food. Since I started feeling better for the most part while on FODMAP, I don’t miss eating tons of things. I’m not often craving foods the way I used to, though I sometimes do get hungry. It takes a long time, though.

I hope I can get a gastroenterologist soon. I’m trying to think, and there just aren’t any other foods I eat. 🤔 Nope.

 

Nesting

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I’m deep into Nesting mode today. My ex husband used to call me hamster girl, because I love organizing and reorganizing all the things. Whenever I’m “sitting still” you can usually soon hear the rustle of paper. Today I went through all of my makeup and reorganized it. It was already sort of organized, but I redid it. Tomorrow I will tackle skincare. Unfortunately, I tried a look after I did the organisation and when I took the photos, my eyes are wonky. My eye pulls in when I get tired, and it doesn’t take much these days. I’m seeing the eye doctor in a couple of weeks. It might even be next week. I’m going to have to show him these photos.

I had a great time watching South Park while doing this. I love this show. It’s so obnoxious.  It makes such good points. My son’s friends watch it, so if he wants to watch it, I’m glad we do it together so we can discuss what he sees. I don’t know if, at almost 13 he quite grasps sarcasm and irony, and I’m happy he will discuss things with me enough to let me talk with him and ask me questions. I love the one where Kanye is making sure Kim isn’t a hobbit, and the one where Stan and Kyle try to beat a million on Guitar Hero. The music is great! Kansas, The Ramones, and I find it okay! Yay!

I’m still having abdominal cramping, but it’s more muscular than digestive, although digestive problems are happening because I’ve been on a chocolate binge lately. It doesn’t take much to upset my system, but it does take a certain amount to satisfy me! Oh well. Gotta live.

A friend asked me an interesting question the other day. I mentioned the cramps, and she misunderstood them for digestive cramps, understandably, and asked if I was going off FODMAP. No, because it was different pain and we sorted that, but I thought, what is after FODMAP? What do I do after that? I can’t seem to tolerate anything forbidden, and many things allowed on that diet and am still mostly nauseated and having heartburn. I am better in terms of bloating and gas, most of the time I know why I am suffering.

I was going to post yesterday, but I decided to nap instead. So selfish. 😁

My head and neck hurts so much. I’m trying to be cheerful, but it’s tough. I feel like my laughter is a little loud and hysterical.

I can vape again, right? I’ve been teaching people in the house how to help with my apparatus (age appropriately, no kids touch drugs, but they can find my discard bin and get my tubing) so I actually will instead of just lying here.

Have a fab day, Zebras! 😙