I’m a 10 out of 10


You know you’re gearing up for a migraine when you lecture a stranger in your dream for wearing too much perfume. I even gave her the speech on the proper distance you should be from someone before you first detect it. I was quite thorough. The proper distance, by the way, is conversational distance. That is where you should first detect someone else’s fragrance.  None of this where they walk into the establishment and you can taste it before you even see the person nonsense.

Anyway, I tried to play with makeup yesterday, but the migraine started creeping up. I continued, because it had been over a week! I played for a bit, then finally had a nap. Slept from 1 pm until 8:30 pm when my husband came to bed. I was so restless and uncomfortable.  I couldn’t settle my stomach. I didn’t have anything solid yesterday except for oatmeal for breakfast.

I couldn’t sleep last night, I was just awake, restless. I keep trying. I’d dissolve into tears every once in a while, the pain was so bad, and then it would dissipate. Then ramp up. Ugh. I would lie there, just trying to be still, trying to distract myself. Reading cat memes. Reading long form news stories.

I was supposed to have Botox injections for migraine and for pain management on August 22-ish.  Since then the migraines are back, I’ve had my first period in fourteen years, (Mirena) and I’m wracked with pain.

I have not heard back from the pain clinic. Realistically, it’s been 3 weeks? I think? It feels like an eternity. I feel like most of the pain right now is in the back of my head, whatever we are dealing with there. One month until my neurologist appointment.

It’s also been close enough to a month that I believe it is time to start harassing the EDS clinic again. I think we shall do those things, see where that leads us.

I’m interested to see if I have a period next month. The question: was the Botox contributing to my lack of menses? How? Dunno. Correlation does not equal causation yeah yeah. We will see.

Let’s tackle one thing at a time. I will certainly bring it up at the EDS clinic, I don’t know if they have a GYN on staff, but I will ask for a referral straight away, as well as for a gastroenterologist, as that doesn’t seem to be happening either.

Happily, however, my stomach seems to have settled and I no longer feel like throwing up my toenails. Yay Gravol!

Short term, I don’t seem to be sleepy. Or I am already dead. I occasionally find a comfy spot and all is happy for a while, so things aren’t terrible. I’m going to focus on medicating myself today, listening to podcasts, and maybe tv if I can. Tonight I’m definitely taking a sleeping pill, and back to that if I need to.

I was thinking of a warm bath, but moving…

I can do a month! Right?

And however long the EDS clinic takes…






I’m deep into Nesting mode today. My ex husband used to call me hamster girl, because I love organizing and reorganizing all the things. Whenever I’m “sitting still” you can usually soon hear the rustle of paper. Today I went through all of my makeup and reorganized it. It was already sort of organized, but I redid it. Tomorrow I will tackle skincare. Unfortunately, I tried a look after I did the organisation and when I took the photos, my eyes are wonky. My eye pulls in when I get tired, and it doesn’t take much these days. I’m seeing the eye doctor in a couple of weeks. It might even be next week. I’m going to have to show him these photos.

I had a great time watching South Park while doing this. I love this show. It’s so obnoxious.  It makes such good points. My son’s friends watch it, so if he wants to watch it, I’m glad we do it together so we can discuss what he sees. I don’t know if, at almost 13 he quite grasps sarcasm and irony, and I’m happy he will discuss things with me enough to let me talk with him and ask me questions. I love the one where Kanye is making sure Kim isn’t a hobbit, and the one where Stan and Kyle try to beat a million on Guitar Hero. The music is great! Kansas, The Ramones, and I find it okay! Yay!

I’m still having abdominal cramping, but it’s more muscular than digestive, although digestive problems are happening because I’ve been on a chocolate binge lately. It doesn’t take much to upset my system, but it does take a certain amount to satisfy me! Oh well. Gotta live.

A friend asked me an interesting question the other day. I mentioned the cramps, and she misunderstood them for digestive cramps, understandably, and asked if I was going off FODMAP. No, because it was different pain and we sorted that, but I thought, what is after FODMAP? What do I do after that? I can’t seem to tolerate anything forbidden, and many things allowed on that diet and am still mostly nauseated and having heartburn. I am better in terms of bloating and gas, most of the time I know why I am suffering.

I was going to post yesterday, but I decided to nap instead. So selfish. 😁

My head and neck hurts so much. I’m trying to be cheerful, but it’s tough. I feel like my laughter is a little loud and hysterical.

I can vape again, right? I’ve been teaching people in the house how to help with my apparatus (age appropriately, no kids touch drugs, but they can find my discard bin and get my tubing) so I actually will instead of just lying here.

Have a fab day, Zebras! 😙