Sorry, I’m Late… Too Mellow…

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I know I said I would be back yesterday, but I have been dealing with a flare-up and have been sleeping up to 18 hours a day. If I am not sleeping, Β I just lie there, curled in a ball. My husband tries to wake me, but he can’t when he gets home. Consequently, I haven’t had a bath in two weeks. A proper one, anyway. I’ve been washing in the sink. And using wipes. To think that is all some people can do! Today I will bathe properly!

I’ve finally smartened up and am taking the full course of meds available to me. I don’t care how loopy I get. I’ve asked my husband to force my medicine into me, not just try to wake me. Β The distinction is important.

The reason I can’t bathe is I am not comfortable without my husband being here to get me out of the tub. I have fallen a couple of times, and the kids aren’t equipped to help if I am unstable at all. I keep thinking I will do it tonight, but then… oh well. My teens smell worse.

I have spent the last two weeks really regenerating. I did a lot of good things, some stupid. First thing I did was end my Beauty Blog. Β That was a tough, but obvious decision. I just can’t keep up with the deadlines I put on for myself. I can’t even scroll through Instagram right now! So, once I ended that, at least the guilt and pressure was off. You can keep up with me on Instagram, which I do update regularly @squidgeaboo. If I am ever strong enough, I would love to do the Beauty Blog again, but I think things would look different. It would depend on my health at the time, of course.

Next, I deleted Facebook Messenger. I think that was a mistake, one I will rectify once I am done this post, but it made sense when combined with my original plan. I was going to originally delete Facebook entirely, but then I remembered how useful it is as a sign-on device. I then decided to delete all my friends. Remember, I was pretty close to total mental collapse, here! Or emotional. As I started deleting, there were some I just couldn’t. (Now, I had added a ton of people after the US elections last year. I was hoping to become more engaged, but it didn’t work well. I made some wonderful friends, so it wasn’t a loss. However, there were many people I didn’t engage with and didn’t recognize.) I know there are good people who got caught up in my zeal, and some in my clumsy fingers, and even a few in my original mandate! I had intended to go back and do a second wave later, but looking at my new feed, I could see all my old friends. I could chat with people I remembered. They were there all along.

Perhaps Facebook enagement is what I need. Perhaps that is what I can handle. I do hope people can forgive me. Although I don’t know if I should draw attention to my boneheadedness and apologize or just do better from here on in.

I’m still playing with makeup when I can. The exhaustion doesn’t help, but it’s important to stay flexible and keep my fingers working with dexterity. Crochet is out, so makeup is in. I asked my husband for a couple of craft supplies and he spent hundreds of dollars on duck tape, the fancy kind, and glue, papers, mats, exacto knives, etc. I’m in heaven! Don’t worry, I promise not to sell you any crappy crafts! πŸ˜‚

The other project I am working on is organizing my house. Well, everything I can reach. The other three members of my family have executive function issues, meaning they aren’t great at the higher levels of care, such as throwing out empty bottles of shampoo, etc. Being organized means everything is in a pile. I have been out of commission for ages, so it’s time to organize and dispose of everything we don’t need. It is going to take ages, as I can only do a bit at a time. The rest of the time, I stare at whatever is on TV. I sat through an Extreme Couponing Marathon. Fascinating. My brain can’t comprehend anything complicated. Just staring at the pretty pictures!

Anyway, organizing! Started with the bathroom… now for my too-big clothes! But the socks go first! Anything uncomfortable…gone! How many pair do I need? πŸ˜‚ Maximum 5. If I go out 7 days in a row, I can either wear fuzzy bed socks or my worn ones twice…

❀

P.S. I should note that my husband has done an excellent job of things over the years: Our house is not exactly a craphole, except for the fact that our kids spread out everything they own in order to see it. He hasn’t gotten rid of some of the other stuff, though, like the shampoo I didn’t like, or the razors I don’t use anymore, or weed out the facecloths that are paper thin. He does think we need new bath towels! He’s taken all my clothes that don’t fit to the basement. I want them gone. That sort of thing. Big Purge. 😈

Mid Break Update

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I am really feeling better. I have taken a giant step back, I feel. I am streamlining my life.

I have divested myself of my Beauty blog. That was difficult. I’m disappointed. I enoyed that so much. I don’t know that it was hugely popular, but I enjoyed it. The commitment was too much, however. I will still continue to play with makeup. It is excellent therapy. It keeps my hands nimble, keeps me moving and motivated. I have a reason to sit up straight for a while, although I can lie down and apply makeup!

I’v pared down my Facebook friends list. I was originally going to delete everyone, and keep my account only as an identifier to log on to websites, but as I was deleting people, there were some who… well, I just couldn’t get rid of right away. I thought I would do two phases. Then, I decided to live with the smaller list for a few days. I like it. So far, it might be the level of socializing I need. Unfortunately, in my haste, I know I let some people go, people I probably shouldn’t have. I can’t remember everyone, though. I do hope they will be back.

After the US election last year, I added tons of friends, thinking there would be opportunities to make some great friendships. I did make some friends. But I overestimated my ability to actively participate in friendship. It’s also interesting to see who had left long ago. Β But I think this was a mistake, overall. As social and gung-ho as I sometimes feel, I sometimes don’t take the time to guard my emotions or protect myself from potential toxic friendships. I need to be more vigilant.

I feel like I have been doing a lot of things in the wrong way lately. Perhaps pushing things too hard when I should be letting go. I’ve been complaining and feeling that I have no friends, but I do, and I have. I couldn’t see them for the riff-raff. It’s embarrassing to admit, but I would be disingenuous if I didn’t. I think, however, those who have been in acute pain for any length of time will understand, at least, how I may have been feeling.

I’m feeling far more zen. Focusing on myself. My family. Becoming well within myself. Banishing negativity. It is hard, because my body is going through hell, but I know it’s for the best.

I’m decorating my space with pretty things. I’m organizing everything I can get my hands on. Β It’s one of my favourite things.

The muscles in my back have been killing me, partly from getting rid of stress, partly from overdoing it. My head still hurts. I have almost constant migraines and facial pain, but I try to not think about it. Keeping up with the medications help.

Another issue is that I am bad at taking my medication. I am now committed to taking my full dose at proper times, and it’s helping a lot. I know I am being stupid about this, but I lost a bunch of friends on a message board when someone decided I was a drug addict for taking my medication (it was the wrong type at the time, not a good fit, I was going through a nightmare on this stuff, so I really wasn’t great at defending myself) and it’s affected me. I am working on this.

My kids are really struggling. I am trying to be more present for them. My son does not, in fact, have Autism, but a series of learning disabilities. My daughter, does have Autism. Both have anxiety disorders. Brilliant kids, struggle to leave the house.

Be well, see you on the first!

❀

In Pain and Grouchy.

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All right. I’m done. I am bloody well ready to shut it down and move to the furthest edges of where Sephora delivers. I’m over this friendship business. It’s overrated.

I had a person ask me to join a group she started, because it was a mutual interest, so I did. The members seem to devote a lot of time to this group, and it happened around the time all my major nonsense started this year. I haven’t posted much to the group, nor to this person much, except to explain my situation. She deleted me today, as a friend! (Yes, I have spyware) Now, I don’t hate her or think she’s a bitch or anything, but I think it’s pretty much a pattern of how abled-disabled friendships go. Tons of assumptions are made, three months go by, well – they must be feeling better by now! They must not be interested. Where do three months go? It took me four months to see my regular pain management doctor! So much can be solved by talking. But when you have an invisible illness, who has the spoons? How hard is it to check Facebook, really? You’d be surprised.

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This is a pretty nice picture. Notice my top from Old Navy with the Zebra print. This makeup took over three hours to accomplish. I had to keep lying down to quell the nausea and pressure in my head, increasing my headache. I also was dealing with a broken crown because my medical examination last week was so painful, I grit my teeth in pain, and… well. We do need to wait until after my Botox treatment shots tomorrow, because I get lidocaine and Botox in my jaw and it helps a lot. If I need to sit with my mouth open while they tinker, it just makes sense. I mean, my jaw aches, but it’s only really bad when I bite wrong. So, we don’t need to wait, but it makes sense. In this photo I have that headache, rapping the back of my head, jaw pain, my hands are achy from fumbling for stuff, shoulders are cranky, they don’t like holding cameras, and my abdomen/hip on the right side is doing that “you really could lie down you know, sure it bunches up your neck, but so what?” But I’m still trying to look cute and show off my makeup, because this is the Internet. Everyone has a perfect life here!

Why do I do it then? Because otherwise I just lie here bored. Some days that’s all I can do. Some days I need to get my family in order. Things take a lot longer than before. My memory is bad. It must be the pain. My neck hurts so much. I can barely keep track of what I’m doing.

I have been buying tons of makeup again. Partly because I can’t keep track of what I have. I was half-joking with my husband, saying makeup is all I have. I started listing all the things that were no longer available to me:

  • Sex
  • Watching complicated television
  • Milkshakes
  • Travel
  • Dancing
  • Beaches
  • Carbonated Beverages

I went on for a while until I felt good and sorry and it was no longer funny in the slightest.

However, I have discovered a few things that I can participate in:

  • Iced tea with aspartame (I do not care, this is keeping me alive right now)
  • Watching comedians on various corners of the cable service
  • Wearing my zebra outfits
  • Lovely Brand caramels, made with condensed milk – which isn’t FODMAP friendly, but if I only have a couple I do okay. The Sea salt ones are so good!

 

This cheered me immensely.

My son turned 13 yesterday, and my husband made a FODMAP friendly cake! Isn’t he the sweetest? Chocolate, which is the boy’s favourite. The girl likes vanilla. I can’t believe I’m Mom to two teenagers. That’s so weird. I’m just a teen myself! Well, it seems that way, in my head.

Speaking of my head, I spend most of my day in it. I deliberately stay away from people and try to stay busy. I’m always doing something. I have two blogs. My kids require as much support as I can give them, my husband needs loose ends tied up, and I need to maintain my health. All from my bed! I can get pretty foul tempered when I’m in pain. I want to save whatever good mood I can muster for those to whom I’m closest. I want to be as unstressed as possible, and that means releasing myself from as many entanglements as I could.

I even told my MOTHER I needed some space right now.

I see you people hanging on there. I appreciate the hell out of you.

Don’t think I don’t see the irony of me saying “people should really talk more” and me just dropping out of society, but if you were in my head you would totally understand. I feel like there’s a gremlin on my shoulder chopping at the back of my head. My neck is stiff, it hurts to turn right or left or look up. My jaw is stiff and sore. It’s tough to think and comprehend what people are saying. It’s quite embarrassing. It gets worse as the day goes along. It feels like I was put in a blender. My brain is spinning. It’s difficult to concentrate. I’ve been working on this post for two hours now. I’ve lost parts of it. Doing anything is like this. This is not what I am like. I am efficient and organized. It’s a nightmare for me.

I don’t remember if I said this, but the doctor said he was referring me to someone who was going to examine my neck/head and potentially do a block. I think that’s what they thought, but maybe an MRI first. Or an x-ray. Would be good. I don’t want them poking around without any idea of where anything is. I mean, even the dentist takes x-rays.

My face is killing me. I only need to make it to tomorrow.

Love to you, Zebra pals! 😘

 

Thinking About Stuff

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I’ve been thinking of my post of yesterday, since I’m lying here with a bout of painsomnia, and while I wrote that while vaping, I think I need to make some amendments.

I didn’t mean to sound joyful that I have no friends, because I do have friends. I am just recognizing some old patterns of people beginning to move on. It is a relief in some ways right now, as I don’t have the spoons to deal with much of anything, however, I know I will be lonely in a couple of weeks when I’m feeling a bit better. What can you do, though.

The signs? The calls drop off, they start to pick fights with you over nothing. They have time for others but not you. They don’t leave you messages like they used to, they ignore your messages. They attack you on Facebook. It’s not pretty sometimes. If it gets really nasty, their friends join in, but that hasn’t happened to me, thank goodness.

I guess I’m happy that I don’t have to put out the energy at the moment. I just had my treatment, and I’m more exhausted than usual. I can’t even joke with my husband. It’s too much.

I need to cut back my existence, and I’m cutting it to where I want it. Talking about what I want to, eating what I want, being what I want. It’s a revelation. I don’t have the energy for more. I don’t expect this to continue forever, or past the weekend. But people ask how I feel and if I need things and listen. It’s shocking.

On the other side, there are lulls in every friendship. If this is one, so be it. Is my health setback teaching me my limitations? Where I need to draw the line?

I have asked several of my friends to read my blog. Some have refused, saying we can talk about these issues. Yet we never seem to. I’m sure some have and do read it. I appreciate everyone who takes a minute to read my words and take this journey with me. I can’t think of a higher compliment.

I’m feeling very confused right now. Please don’t confuse this with unhappiness. I feel like I am doing a lot of growing. Shedding a skin, gaining a new confidence. It’s so strange as I need to retreat further into shelter of bed and medicine I feel more confident, but I do. I feel more settled. It’s almost like I was scared to be alone, and I found out I’m okay! (That’s so strange but it’s 1:40 am)

I’ve been wondering if it’s just Canada that people don’t reach out assuming you’re bothering someone or prying. Except for one or two people I have to contact everyone, and I don’t have the energy even on a good run.

That’s not to say people won’t be welcomed back if their schedule lightens up. Providing I’m not an international supermodel by then. Β πŸ˜‚πŸ˜‚ I have one friend who habitually reminds me I’m not her #1 friend, I get it.

Speaking of modeling and #1 friends… 😈 I put this photo up on Instagram the other day, no big.

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No big deal, it’s me wearing a Kate Sommerville anti acne mask. (Try to keep it together you know who you are! πŸ˜‚πŸ˜‚πŸ˜‚) Well, Kate Sommerville PR, sees this and asks to use it. Which cracks my friend up no end. 😍😍😍 I’m glad I could bring her joy. All that makeup expertise, and I slap on a mask, the crowd goes wild.

I slept most of the afternoon again yesterday. It helped. I want to sleep now, but husband is snoring, it’s raining, and I’m aching. I dislocated my jaw again. My daughter brought me a cold hamburger from the fridge and I was so hungry I tried it. Dumb. I just had the damn shots, too. Idiot.

I’m still nauseated. So it kind of doesn’t matter, anyway. I had a Mars bar. I’m still under my calorie count.

What do you think they might do to my pubic bone to make it not hurt? Duct tape? Let’s start around my hips and get more intimate if we have to.

OK, Β it’s almost 2 am. I’d better try to sleep!

‘Night Zebras! 😘

Friends (do do do doodelly doo)

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It has been said every seven years one undergoes major life changes. Or maybe that’s Scorpio. It’s held fairly true in my life, anyway. I turn 47 in November, and my life is undergoing some real flux. One major area this is occurring seems to be friendships.

I’ve had a complicated relationship with making friends most of my life. Both of my parents have mental illness issues, and were constantly coaching me on how I should be interacting with my friends. How I could be doing better. The other messages were that I’d better hang on to any friends I get because I’m ‘ugly, stupid, and weird’. I think the motivation was to keep me from having a big ego, but I was crushed. The pain I was in with the endometriosis every month, plus my EDS pain, dismissed as ‘growing pains’. I started working at age 12, since my parents decided I should pay for everything. They would provide the room and food, which I rarely ate because I was already having stomach problems, and I bought everything else. They provided an allowance of $60 a month I think.

I barely had time for friends, but clearly I had to do whatever anyone asked of me, because that’s what friends do, right?

Set me up for 30 years of misery.

In my 20s I worked three jobs, I didn’t really have time for friends, I eventually moved away from all my high school friends, being nuts while on opioids alienated most of them. Some hate me because of my ex husband. Most have no idea what it was like growing up in my house. The suicide attempts.

When I was in my 30s I joined a baby names board. It was fantastic. I had a tribe. Until someone decided I was an addict and called me out. Nobody defended me. Lost a lot of people. I wasn’t an addict, but was on those damned short acting opioids that weren’t that great. Dependent yes. She was saying I was Rush Limbaugh.

Our friendships moved to MySpace then to Facebook. I got closer to some people. I was still mobile, seeing people at Meetup.com and having friends. But all my guy friends were still handsy, and my girl friends all required gifts and only talked about themselves. But that’s the cost of having friends, right?

I hardly go on Facebook now. I mean, a couple of times a day, vs sitting on it like before. Before, I used to chat with friends, but now everyone just wants to argue or sell you something or have sex.

I used to post on friends’ statuses, but now their friends want to aggressively argue with me. Or criticize. Or completely ignore. I don’t think it’s personal, I think it’s what the place has become.

A bunch of my friends have drifted away. The bunch that I talked to on a regular basis. What a strange coincidence. This hasn’t left me friendless, of course. But the ones I have remaining aren’t the ones you speak to every single day.

But you know what? I feel peaceful.

I feel like I’m not pretending to be someone I’m not. I’m engaging with people in small bits. I’m not overwhelmed. I’m not angry. I’m not listening to people’s problems.

I am able to engage with people I care about.

Perhaps it is just that I don’t have the energy right now to be more to anyone. My son has been coming for snuggles each night and it’s wonderful. Β We need the connection. I owe my Mom a phone call, but I just don’t have the energy.

I’m finally learning to set boundaries.

I’m trying to let myself not feel guilty. There’s a stupid tape in my head about having to be social. It’s idiotic.

Maybe we will drift back together, maybe not. Maybe we’re just keeping different hours right now and things will change. Maybe they are ghosting me. I’m focusing on what I can control. Those who are responsive in my life, and what I can do to be comfortable.

Am I horrible?

My headache is subsiding, I just want to sleep πŸ’€πŸ’€πŸ’€!

Have a great day Zebra pals! πŸ˜™

PS, I was having a ruminate about what bothered me so much about the men (and women) being forward on Facebook messenger. Β There are two things. First is it’s rather like being cold called in your messages. Another telemarketing tactic? Although, with the amount of sales going on, yeah. And Second, you are treated rather like a non person. As I move through life having things explained to my husband, being shoved out of the way in my chair, it feels really great to be reminded I can’t even participate in the dirty nasty with my own husband.

Maybe it would make me less grouchy? πŸ˜‚πŸ˜‚πŸ˜‚