Nachos, Flanders-Style!

giphy1

I had my Botox for migraine about nine days ago, and I feel the toxin beginning to work. The injections were an adventure. My appointment was for Thursday at 4, and somehow it was changed to Friday at 9, but nobody informed us. We learned through the grapevine. When we arrived on Friday, I was in a lot of pain, still static on these opioids, holding strong. I have not been able to sleep much, just two or three hours a night, and then every fourth or fifth night I sleep for ten hours.

I am waiting for my appointment, and three staff members are chatting. Then two start scream-laughing. I absolutely blacked out. I am so sensitive to noise and light, in pain so long, sleep deprived, I have no idea what happened,  but I found myself in a quiet room with husband in the dark. Crying.

Next, my doctor comes in. Have I mentioned she looks like Amy Adams? She drives needles in my face I can’t even feel. Then she tells me she is leaving to do a fellowship. She has referred me to her mentor, though.

I’m crushed.

I’m seeing my pain doc this week. Days are meaningless now. I’m so tired. My stomach is so upset. I’m constantly nauseated despite the medication.

Husband and I undertook an Ehlers danlos Triathlon last Friday. I had an EEG, bloodwork and an xray in two different hospitals in an hour and a half. We left the house at 8 am. and I was home with pajamas on and nachos by 10:58 am. Not bad. I eat FODMAP nachos, which are the corn chips, with lactose free cheese melted on top and lactose free sour cream. Yay. It’s my traditional after doctor food.

I hope this next appointment is helpful. I would like to have enough medication to function and to move without crying out all the time. Sleep would be nice, as I am so very grouchy.

I very much don’t want to live my life like this. I get so many comments about how my pain is from inactivity or I don’t move enough. It’s because I am in so much pain, geniuses! I’m glad they are actually looking at my pelvis and the structure at least. But, do they not get that if I wanted to sit around all day, I would sit around all day? I don’t need an excuse or a cover story about having chronic pain. My husband makes decent money now. I could just be a housewife. But I did actually have hopes and dreams.

🦓