Gurgle

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I slept until 3:00 this afternoon.  I woke to my husband stumbling into the bedroom declaring he just had a nap! This may be the first nap he has ever taken as an adult.

On Friday I was waiting for Pat McGrath’s lipstick collection to drop at noon, and at 11:45, I started vomiting. I managed to buy some lipstick, but then took a nap. Saturday, I was just as gross, and I finally figured out I may have the flu. Considering my daughter has it, and likely my husband does, and my son has been feeling awful… I just may be a genius. There’s been a nasty flu going around here, and my daughter has been having trouble since before school started. She’s either had it twice, or had an extended remix.

My mom was so sweet, she sent me some money on Friday to buy a treat to cheer myself up. From both her and dad. So sweet.

It was tough, but I had to put my Beauty Blog on hiatus until October 5th. I just don’t have the spoons to keep up with it right now. I’m so sad, because it’s one of my favourite things. I’m hoping the neurologist has a theory and I’m feeling better. I would like some answers and a plan.

When I can’t even do the small things, it’s a problem.

I need joy. To be able to supply joy. And I’m not even talking about sex. I’m so many layers below sex, you can’t even imagine. I have about ten layers to go before I even can think about sex.

On this level is bathing, reading, amusing myself, sitting up, and taking my medications. Not just staring into space.

Sigh.

💜

Why do People Gotta be so Mean?

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WARNING: MAY BE A BIT RAMBLY AND DISJOINTED. STILL NOT AT 100% MAKING SENSE. STILL FLUISH.

It’s Monday afternoon and I’m on my way to feeling human once again.  Somewhat. I am fairly sure it will take a few weeks before I am completely back and feeling whole, as it sometimes does with colds. It’s funny, it’s not always the really heavy colds, either. This one I had a light sore throat, but I was so tired, and those sores on my tongue came back. They seem to come back now the second I get run down. They are terrible. I can’t have more barriers to eating!

Yesterday was my husband’s 49th birthday. He looks much younger. He was asked last fall to join an under 30 kickboxing club. 😂 He declined.  The family finally got me to move at about 4 in the afternoon. I was still very weak, but I hung out, still in bed, because I’m always in bed, tried to be a good sport, and tried some food. My husband had made some FODMAP friendly brownies, so I had a couple. He eventually made me a smoothie, which I spilled all over myself. Yay! I’m just waiting to take a bath.

My head is really hurting today. It never ends. It’s nice my brain decided to ease up while the rest was acting up. Or I didn’t notice it.

The hospital hasn’t called back, and it’s long past 48 hours, so I assume we aren’t dealing with an infection. So, it looks like I have to face facts and will likely have to find a new GYN. I love mine, but she isn’t available enough to me, and did not return my husband’s call. Can’t work with that. I don’t have the energy.

So, I can’t remember if I mentioned this, but I’m too weak to check, as we were leaving the exam room, we walked by the patient at the nurses station on a stretcher. Obviously, I was in a room because of the examination that needed to be done. The patients partner was sitting crossways across the bed and my husband walks past, holding my hand, I’m clutching my stomach, and she stretches her legs out and tries to kick me in the knee. She just barely makes contact, though, short-legs-having-bitch. Why?

Then I get out to the waiting room, I had to make sure I didn’t hallucinate this one. This woman was sitting in the waiting room, and it was about half full. My husband found the closest chair and dumped me on it, and this woman was sitting across from me. Husband goes to get a cab, and she goes “Ha ha” and I assume she’s looking at her phone, but she’s staring me down. I just put my head in my hands. She may have taken a photo, because she had her camera out and in position, but that didn’t occur to me until later. 6 mg of morphine, remember. I did not fall asleep! But I did get somewhat stupid. I remembered what happened, but it took me a while to parse it. She looked so normal! Then this guy came out that ahe was with, and he did not look, uh, well. I appreciate a man who works with his hands, but this man looked like he worked with his face! Wow! I don’t know the relationship, but the age difference looked huge! I’m biased, because my ex was older and it was bad. Strange people everywhere.

I don’t understand deliberately trying to hurt someone. And on that note, a big shout out to twiggyjen44 whom I may have been inadvertently ornery with in my cold/pain/drug induced haze. I am very sorry if I was snarky. Thank you for your help and advice! 💜

Over this next week I’m going to work on recovering my strength before making any decisions. I seem to have had one round of bleeding that has stopped. Perhaps my lining had just built up enough that it needed to slough. We have moved my cranberry pill to the morning, so that should help with any chronic yeast problems.

Oh! Yes! When the nurse was inserting the iv into my hand, she really crammed it into the back of my hand. I heard it pop when it entered my vein. That has never happened before.  But I have the teeniest of yellow bruises. I am one Zebra who doesn’t bruise! And another thing, my body should be stretched out from being fat, but it snapped back! Reverse elasticity? 🤣 I think my skin just isn’t very involved.

Another thing at the hospital, while I had my blood drawn, this woman came in, she was in her large 60s, she approached the triage nurse. Patient explained she was at the ER and the doctor wanted her to come back for a follow up test. Triage nurse explained patient had to go to her GP. Patient claims the doctor told her to come back here. Triage nurse tried not to roll her eyes and started to ask the patient questions. Which start to go in circles. We go through this whole routine three times, at which point the patient decides she wants to come back tomorrow, and tries to book an appointment. All the nurses were listening in by the end, trying not to either laugh in sympathy or strangle the patient.

When I was still waiting in the hall, one lady jumped up because her partner was getting worse, they were worried about his heart. She bashed into my stretcher, which hurt so much, and surprised me, I felt so bad for calling out, but I couldn’t help it. She apologised, but her mind was elsewhere, of course. Goodness. I’m such a jerk when I don’t mean to be. It’s good I don’t go out much! 🙊

I must admit, though, even though I had to spell Ehlers Danlos for them, I did get treated awesomely. Adequate pain management, no drug seeking questioning (it does help to go to the hospital that does administrate my pain management), thinking ahead so I didn’t have to move too much, all in all, the staff was very considerate.

Okay, I’m going to go find someone to monitor my bath. I fell a couple of weeks ago, and I like to have someone keep an ear out for giant splashes or thuds.

💜

Irreplaceable Me

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How many days has it been? A million? Ugh.

I’m so bored. All I can do is sleep and sometimes take medicine. I’m way off my routine, I’m not sure what I’ve taken on time this week. Actually,  I’ve mostly missed my 3:00 pills and my mmj. That should be it. My 6:00 a couple of times. But my husband has been getting home earlier and checks now.

I’m seeing the doctor tomorrow! Husband and I are making our list tonight of what we have been seeing. I’m not going to let him bully me into hoping things will get better. This has been consistent pain now for months. I don’t know that I necessarily need more pain medication, but I likely need more investigation into what is going on. This ‘it’s just eds/endo/fibro’ stuff isn’t going to work anymore. When I’m losing use of my hands, when I can’t eat for several days (usually when I have the flu I can take something in without the digestive problems I’ve had. I woke up this morning to find myself on the toilet, so, yeah, ew.).  I want to get this neck thing straightened out -literally! My knees, these damn headaches, the list goes on.

The positive side of things is that I’m reminded how valuable I am to my family. My son turns 13 on Sunday, and my husband has been admirably juggling everything, however the gifts had not been bought. That’s usually my domain. When I have a flare-up, I can still often get things done. When I’m completely out of commission and can do nothing but sleep? Then we have a problem. Then we start to see how not having Mommy around affects us.

I woke up yesterday evening around 7:00 to find my son hovering at the foot of my bed. He hasn’t been diagnosed, but he is definitely on the autism spectrum, and he was doing a little dance of impatience with hand flapping as he waited for me to wake up. As soon as I opened my eyes he dove into my bed and exclaimed he was waiting for me to wake up because he wanted a snuggle. He settled right in beside me, and we watched TV.  It was lovely.

It’s good to be needed.

These are the sleep shorts I bought at Old Navy. I bought 2 pair 20170606_201735of shorts, I think I have 3 complete pajama sets, as they have camisole to go with them, a romper, a strappy top, and a pair of socks all with the zebra pattern on them.  I will take a photo one day when I’m wearing them, once they are all washed up! It’s nice to buy from the regular size part of the store. There are so many choices!  I’m almost redoing my wardrobe. I have so many clothes to get rid of. I don’t ever want to get big again. But we can’t always control that stuff, can we? My biggest things are not eating when I’d rather be sleeping, because sometimes I just eat to keep myself awake, and keeping an eye on my sugar intake. When I eat too much sugar, my weight skyrockets. When I stop, my weight drops at 2 lbs per week. Magic.

OK.  I’m tuckered out. I have lots to do for tomorrow.

Have a beautiful day, Zebra friends! 😘

Srsly.

giphy4This would be funny if it wasn’t so pathetic. I woke up this morning, after a fairly decent sleep. Husband went out on Saturday, his friend was in town so I got twelve hours sleep in. Then last night I fell asleep around 10:00, woke up a few times, but 6:00 came round, as it does, and I woke up cheery!

Until I had to call my husband to grab the barf bucket.

So this is what’s going on today. I am weak and exhausted, which I was blaming on the cold, but I guess is a flu? And food is completely unappealing. I’ve taken some Gravol, and I think it’s time for pill 2.

I was looking forward to feeling better today, maybe playing with some makeup, but that isn’t going to happen, I don’t think. Looks like a quiet day napping. Sigh. Again.

I bought some of the cutest clothes at Old Navy! I had to revamp my wardrobe at my new size. They had a bunch of cute items with Zebras on them! I can’t wait until they get here and I’m well enough to show you! ☺

Have a restful day, Zebra friends! 😘 I’m taking a sign from the universe to rest.

 

I’m Gorgeous! (Not)

I had a super painful boutique of painsomnia last night. As I was u6hjv9jgygs4orolling over to my left side to go to sleep, my left knee subluxed and I was in a lot of pain. I couldn’t quite settle it into place, and lay aching from 10:30 until I gave up at 2:00 am.

At 2:00 am, I gave up and picked up my tablet, started playing on the internet. I had to dim the light way down, because my eyes really hurt. I was able to chat with my sister in Beijing around 6:00 which is a nice treat. I haven’t spoken to her in a while. She was on vacation in Indonesia recently, and didn’t even load photos up anywhere! But Saturday is her busy day, and she told me this hilarious story about one of her 4-year-old students punching her in the face. I’m pretty sure the hilarity was in the telling.

After we chatted, I fell into a restless sleep, and woke up to my alarm at 10:00 am. Damn me for deciding to be productive on weekends. I hit the snooze for an hour and got up to use the washroom. I got back into bed, and decided to survey the damage of my face.

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My left eye is quite swollen. It looks hilarious. It’s not quite as weepy, but is tender. When my husband brings our son home from therapy, I think we should call Tele health and check. My eyeball isn’t infected, or I should say affected, I’m just sore around the eye, the left one, and I sleep on that side -so it’s drained into that sinus, we figure. I have taken Benadryl allergy complete, and am sitting propped up, but it’s not draining, really.

I don’t want to go to a walk-in clinic, especially while flu-ish because I don’t want to catch something worse. If it’s not urgent and can be managed, I’d rather hang on and go see my GP on Tuesday, because of course it’s a long weekend! I’m sick just about every long weekend, it’s a running joke. Our daughter is sick, too, poor sweetie.

To add to my grotesque appearance is a large pimple where my chin used to be. It’s scabbed over now and looks like a cold sore that got lost.

I need a bath so much. I am so sore, and my hair has been two weeks without a wash, and needs detangling. It would have been so good if I could have gotten to it even a day or so ago! I just do not have the spoons. I will have to tackle it first thing tomorrow. Put the family on notice. I feel so weak.

I had a neat conversation with a friend today. She is a nurse, and gets the flu shot because of being around immune compromised people like me, but she hadn’t noticed a difference herself. I explained how normally, a flu could keep me sick and essentially unconscious, because I’m sleeping to get better for six weeks or so to gain my strength. But when I have a flu shot, and they get them right, I recover much quicker. I’ve been sick nearly a week, but I’m not sleeping the whole time, and I have been keeping food down, etc. She didn’t realize it could be that bad. She’s so lovely. I’m sure she’s a great nurse!

pg2bvxtorfh32I went on a bit of a shopping spree last night. Urban Decay was offering triple points, and I’m determined to make top-tier, for some reason; and then I bought some lipstick. If I can’t put it on, at least I can buy it! I have to stop with these sprees, especially when I’m over budget. Our tax system is such that our payroll tax, I think it is, starts in January, and when your contribution is full, they stop collection, around July. This means my husband loses $1,000 out of his cheque for six months and then we forget the rest of the year. Every January it’s a new round of belt-tightening. What? Save money for the lean times! Pshaw!

There have just been so many escalating costs, too. Especially just around the first of this year. I think I’ve whined about this plenty. I won’t bore you more. It’s tough finding things to do when your concentration isn’t great, and your hands don’t work so well. Online shopping is so much fun, but that gets old too. It’s just stuff. I am enjoying playing with it when I can. I’m enjoying blogging here, too. I’ve met lovely people. Only lovely people.

I’ve offended people talking about my spending, but they may actually do things, outside, like in public. I don’t think they even realize there are months I don’t get to leave the house, so $300 on makeup isn’t horrid. What did you spend $300 on last month able person? Lattes? Taxis? Lunches? It adds up. I didn’t have those expenses, at all. But I do realize I have privilege. Many people don’t have the means. I married a smart, hard-working guy, and we have had some really lucky breaks along the way.

I’m aware I may be babbling. I’m in that hazy, cool, fun, dreamy, tired state.

I often resent that I had to stop my career, such as it was, to tend to my broken body. What could I have done if I had gotten proper support instead of being encouraged to go on LTD? Would I have been a better employee were I not in pain all the time? I don’t know. Life is this way now, and I’ve spent so much time getting to know myself, I wouldn’t trade with anyone now.

Our son is going on a class trip for four days next week and I’m stressed.  He’s growing so fast! Ugh, these kids give me so much stress, and are my world, all at the same time. I didn’t realize parenting would be as much fun as it has been. I’ve laughed so much along the way! There have been lots of tears, too. But lots of laughs. I will be so relieved when he’s back home.

Probably should nap now. My eye hasn’t changed, but is getting tired.

Wash your hands, my zebra pals! 😘