I’m a 10 out of 10


You know you’re gearing up for a migraine when you lecture a stranger in your dream for wearing too much perfume. I even gave her the speech on the proper distance you should be from someone before you first detect it. I was quite thorough. The proper distance, by the way, is conversational distance. That is where you should first detect someone else’s fragrance.  None of this where they walk into the establishment and you can taste it before you even see the person nonsense.

Anyway, I tried to play with makeup yesterday, but the migraine started creeping up. I continued, because it had been over a week! I played for a bit, then finally had a nap. Slept from 1 pm until 8:30 pm when my husband came to bed. I was so restless and uncomfortable.  I couldn’t settle my stomach. I didn’t have anything solid yesterday except for oatmeal for breakfast.

I couldn’t sleep last night, I was just awake, restless. I keep trying. I’d dissolve into tears every once in a while, the pain was so bad, and then it would dissipate. Then ramp up. Ugh. I would lie there, just trying to be still, trying to distract myself. Reading cat memes. Reading long form news stories.

I was supposed to have Botox injections for migraine and for pain management on August 22-ish.  Since then the migraines are back, I’ve had my first period in fourteen years, (Mirena) and I’m wracked with pain.

I have not heard back from the pain clinic. Realistically, it’s been 3 weeks? I think? It feels like an eternity. I feel like most of the pain right now is in the back of my head, whatever we are dealing with there. One month until my neurologist appointment.

It’s also been close enough to a month that I believe it is time to start harassing the EDS clinic again. I think we shall do those things, see where that leads us.

I’m interested to see if I have a period next month. The question: was the Botox contributing to my lack of menses? How? Dunno. Correlation does not equal causation yeah yeah. We will see.

Let’s tackle one thing at a time. I will certainly bring it up at the EDS clinic, I don’t know if they have a GYN on staff, but I will ask for a referral straight away, as well as for a gastroenterologist, as that doesn’t seem to be happening either.

Happily, however, my stomach seems to have settled and I no longer feel like throwing up my toenails. Yay Gravol!

Short term, I don’t seem to be sleepy. Or I am already dead. I occasionally find a comfy spot and all is happy for a while, so things aren’t terrible. I’m going to focus on medicating myself today, listening to podcasts, and maybe tv if I can. Tonight I’m definitely taking a sleeping pill, and back to that if I need to.

I was thinking of a warm bath, but moving…

I can do a month! Right?

And however long the EDS clinic takes…




Monday Dawns


I spent much of this past weekend crying in pain, but with some rest, slow massage, gentle movement, medication, and patience… I’m feeling slightly better. At least I’m not longer getting the spins every time I sit up. I even soaked in the bath for a bit! Washed my hair for the first time in two weeks! Well, my husband did. He then spent a half hour gently combing the tangles out. He’s so good to me. 💜

My head hurts right where I hit it all those years ago, where the fracture is. Holding it still is the most comfortable,  but I’m in danger of getting stiff, which makes things worse. My short term memory is still awful, and I can feel the pain creeping up. Lying on my side seems to help, so I suppose I will do that for a bit, see if it works.

When I woke up I felt fully okay for almost ten minutes. I was so excited.  Now I’m disappointed. I can feel the symptoms returning. The nausea, the dizziness. I’m so frustrated. I don’t want to bother anyone, but I can’t survive a month and a day until my appointment. Wait. That’s wrong. I can. I will. I just will be miserable.

To top it off, I gained a pound last week because I wasn’t eating, and my metabolism shut down. Grrr.

What would you do if you were me, Zebras? 🤔


UPDATE: an hour later, I feel worse, and joining the party my right lower abdomen feels like it’s harbouring a rabid squirrel. I did consider calling an ambulance, but it subsided. I can’t figure out why such acute pain all of a sudden. I’ve vaped, trying to be relaxed, seems to help, try to nap. See what that does.