Gastroparesis Awareness

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Lovely, I was just reading a post on Twitter from the EDS Association reminding us it was Gastroparesis Awareness month. I replied I was pretty sure I had this, was awaiting diagnosis. Someone snarkily replied it was dangerous to diagnose yourself from the internet, and did I have tests scheduled. I replied I was trying, I had other priorities, which got, if you’re so sick, you should have your priorities in order. My retort was about needing my energy to bug my pain doc about my neurologist at the moment, but under normal circumstances, definitely.

It’s such a shame there are so many scammers out there we have to be suspicious of everyone. That really sucks.

I got partway into my makeup and just ran out of steam. I couldn’t go on. I’m dead. I hate using that analogy, but my lips are pale and I’m drained. I feel awful.

Anyway, back to gastroparesis. I have almost all the symptoms. It involves very slow digestion. I will eat at lunch, still be full at dinner. If you overeat, sometimes you vomit the remainder up. I am not doing this much anymore. I have a very small appetite, am constantly, well mostly, nauseated. My stomach is often bloated. Constipation, cramps, constant heartburn. I can’t think of much else.

My current diet consists of:

  • My morning coffee
  • Oatmeal for breakfast (the bad kind)
  • Homemade nachos with corn tortilla chips, melted lactose free cheese and low fat sour cream
  • glucose-fructose free iced tea
  • gluten free pizza
  • Chicken Tacos
  • Chicka Chicka Boom popcorn
  • Rice Crackers
  • Homemade hamburgers
  • Homemade hash browns
  • Chocolate (This is not necessarily FODMAP friendly)
  • Chocolate chip pancakes with syrup

 

  • I have been munching on lightly salted chips the past couple of days, as it quells the nausea. It worked during my pregnancies, my first one I lost 30 lbs! I was still 30 lbs heavier than now! 😮

This is all the food I would eat in a normal week. Other things we have in the house I can have are:

  • Lactose free ice cream
  • sorbet
  • Rice pasta with garlic and onion free sauce (gag)
  • Husband has a mini storeroom of chocolate in the basement, apparently.  For me.

I love my chocolate and popcorn, but I don’t miss my food. Since I started feeling better for the most part while on FODMAP, I don’t miss eating tons of things. I’m not often craving foods the way I used to, though I sometimes do get hungry. It takes a long time, though.

I hope I can get a gastroenterologist soon. I’m trying to think, and there just aren’t any other foods I eat. 🤔 Nope.

 

2 thoughts on “Gastroparesis Awareness

  1. This sounds so like me too! My EDS has taken over on so many levels over the past few years…..POTS/dysautonomia now being taken seriously, I have a follow up with endocrinology tomorrow, pain etc etc….my gut has always been unpredictable, IBS diagnosed aged 23, and of course all the side effects of the opiates in recent years. But now it is so slow and recently I’ve started having exactly the same symptoms as you with the feeling full, nausea, intolerance of certain foods (gone gluten free, now contemplating dairy), bloating, pain and cramps on eating and after…..I sometimes wonder if I am reading too much about the condition and putting a label on everything!! But it is only now I am learning more and being able to put the jigsaw of symptoms together – for my teenage daughter too who has just seen a geneticist! Going back over your posts!!! Sending hugs your way, C xxx

    Liked by 1 person

    • They are much appreciated! 😁 I’ve had good luck with the FODMAP diet, which eliminates gluten and lactose as well as glucose-fructose, garlic, onion, and many other things. There’s a post! I find my stomach is much better, as is my heartburn. My joints don’t hurt as much. You are supposed to add foods back, but they hurt my stomach. I’m hoping I can start with testing soon. I have lines out to every kind of doctor and they aren’t returning calls. All on vacay? 🤔

      Liked by 1 person

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